can anyone suggest something to help ... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,046 members5,570 posts

can anyone suggest something to help with dry mouth, I have Sjogren's but lately it is terrible.

uknlv profile image
11 Replies
Written by
uknlv profile image
uknlv
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Carolanne profile image
Carolanne

Yes I have been advised to chew .....chewing gum.... and it works for me.

zenabb profile image
zenabb

Ask the chemist for artificial saliva.

Anteater profile image
Anteater

Hi Uknlv

Biotine is quite good and something new that the Eastman Dental Hosp told me to use is Xerostom spray - I have tried to get it on prescription, given to me by Eastman, but my GP wont prescribe it - so will have to buy it direct. You can look it up on Internet. The manufacturer is CURAPROX UK

Tel: 01480 862084. I have yet to try it as have not found anything which is really any good. I have also been told to chew sugarless chewing gum but I don't like chewing gum it makes me feel ill.

Good luck x

Anteater profile image
Anteater

Forgot to say you can get it on a private prescription !!!

BarbJ profile image
BarbJ

A voice coach recommended Thayers dry mouth lozenges to me, a lot of singers and other performers use them apparently and they are also recommended for Sjogrens etc. I've not yet tried them myself, in fact hadn't searched the net for them until just!! On Amazon UK they're £8.99 for 100 (post free - have just ordered some): they are Sugar-Free, Sodium-Free, Gluten-Free, Fat-Free, Lactose-Free, All-Vegetable, Preservative-Free, Fluoride-Free. They also do a dry mouth spray at £10. I will let you know how I go on with them. I already have the artifcial saliva on prescription but it's not convenient to use it all the time and I'd rather limit the number of chemicals I ingest if I can :).

MikefromsouthNZ profile image
MikefromsouthNZ

I also use a product my dentist gave me called: GC Dry Mouth Gel.. I put it on my finger, then rub it along the roof of my mouth, or along my gums.. It comes in fruity flavours but I like mint and fruit salad the best.. my dentist just gives me a couple of tubes each time I see her, and no charge.

The GC is the manufacturers brand name. This link will help more: gcamerica.com/products/prev...

uknlv profile image
uknlv

Thanks everyone, I have had the artificial saliva spray but it turned my stomach every time I sprayed it. But I will try these ones you have suggested as the flavoured stuff might agree with me better. The spray I have reminds me of snot, I know yeck but that is what it tastes like to me lol My mouth gets so dry that at night my tongue gets stuck to the roof of my mouth, and then it hurts for hours afterwards. So thanks again for the suggestions, I will ask my Gp and I have dentist appt coming up soon so will ask him as well!

Yorky profile image
Yorky

Hello, I know that you are not far away from me as we both go to Chapel Allerton Hosp. I also go the Leeds Dental Inst where they seem to understand Sjorgens. I take Pilocarpine tabs which stimulate saliva production and also have Nystatin to treat thrush infections which can make the mouth quite sore. I was told to keep well hydrated, so I always drink lots of water when I am at home. I use the Biotene mouthwash, can be got on prescription, but I buy it myself, it is very soothing. I have As Sailva Orthana oral spray and Bioextra moisturing gel, all prescribed by the Leeds Dental Inst. everything seems to help just a little.

Jessie122 profile image
Jessie122

Hello, just to say I had a lot of trouble getting something that helped. I do not get along with sprays they do not work for me. I use Xerostom Saliva replacement gel, Toothpaste and Mouthwash. I find the Gel good at night as it coats your mouth and it does not dry out so quickly. I used to wake frequently for drinks of water. I buy the toothpaste and Mothwash online from Amazon .co.uk but the saliva replacement gel is available on prescription. Ordinary toothpaste makes dry mouth worse also the central heating which we use at this time of year.(some suffers use a dehimidifier) You can get the Toothpaste and mouthwash on private prescription however the goods cost £9 and the carrier charged £22. There are other brands of gel ext all are good but I stick to one brand of products. Some medication can also make you mouth more dry.

I hope you get some relief soon.

stevieboy profile image
stevieboy

dont use mouth wash with acocol in it .Use Boitine .

Ring british Sjogrens snydrome associaton 0121 455 6532 bssa.uk.net

uknlv profile image
uknlv

Thanks again everyone, I got an appt with my GP on Monday to see about getting some of the Gels as I am the worst at night and wake up several times an hour having to take a drink of water.

Not what you're looking for?

You may also like...

anyone have ing probs with digeestion ..dont know if its connected wiyh raynauds or something else .HELP !

i am haveing digestion probs ,doesnt feel like food has gone down or fluids keep burping and...
suzierwp330 profile image

I have just been to the optician and been told I have dry eyes. She recommended drops, but what are the best drops to use?

I also have very dry nostrils (inside) - is this connected to the scleroderma? Could the dry eyes...

Is anyone else with raynauds having these symptoms!!! They said I have primary!!

Freezing cold most of the time... All over the body apart from sweating under the arm pits and...

Scleroderma has shrunk my mouth to point where dentist can hardly get instruments into it. Anyone else shared this experience?

I'll probably have to seek more specialised help, but wonder if anyone else has had this problem...