Has anyone on this site ever had BOTO... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Has anyone on this site ever had BOTOX in their hands or feet for Raynaud's/Ulcers?

Anteater profile image
6 Replies

Has anyone on this site ever had BOTOX in their hands or feet for Raynauds/Ulcers?? I have had BOTOX in my hands twice now for Raynaud's.

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Anteater
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6 Replies
zenabb profile image
zenabb

Never heard of that. How does it work?

Anteater profile image
Anteater

They inject the Botox between the base of the fingers and thumb - the botox blocks the nerves so apparently the blood vessels stay open, so in turn increasing blood supply!!

Rp321 profile image
Rp321

Does it work?

and how often would you have to have it done?

Anteater profile image
Anteater

Kaz, I think so - Funny thing is, I went to see my sis a couple of weeks ago and she commented on my fingers saying that they looked a bit more normal - haha not so tight and sausage like ...... I am going for another lot soon so I will comment on that just want to see if I remain ulcer free this year - if I do it will be a miracle xx so watch this space xx

AshtonRains profile image
AshtonRains

Anteater - you've had the BOTOX done before? I get such severe ulcers, 3 or 4 at a time contstantly! Would you recommend it?! And how did you get to hear about it and get the treatment? xx

Susiewinnie profile image
Susiewinnie

Yes, this past March I had botox it didn't work, because I had gangerene in one small finger, and the other small finger was staying blue, with a ulcer coming out, on the tip, both fingers were amputated at the first joint. Hard to type now and other little annoyances with having amputated fingers at the joint.

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