Numbness/Tingling 24/7: Hi - does... - Scleroderma & Ray...

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Numbness/Tingling 24/7

Carol-C profile image
5 Replies

Hi - does anyone else have the numbness/tingling in their hands and end of nose 24 hours a day? Don't know where I go from here if the Rheumatologist is baffled by it! Had 4 lots of blood tests but he doesn't think I have anything serious going on.

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Carol-C profile image
Carol-C
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5 Replies
zenabb profile image
zenabb

No, I'm afraid I don't experience this 24 hours a day. Only occasionally.

Emma2 profile image
Emma2

That must be really annoying to have all the time - I only get it at certain times and that is bad enough! I hope you get some answers soon.

Jeanette_Ish profile image
Jeanette_Ish

Yes i experiance this 24/7, on hands and feet, it does not stop, the numbness some days are not as bad as others you get used to, i have learned to live with it as i though this was normal till the doctor said he could not find anything which would indicate this. I also get rashes on top where there are what looks like blisters, which become itchy they get imflamed and the skin breaks, it so painful on top of the constant numbness and the pins & needles it does get depressing

Carol-C profile image
Carol-C in reply toJeanette_Ish

Hi Jeanette - I'm glad I'm not the only one with the constant numbness/tingling. I get days like you, where it's not as bad. I don't get the blistering though, that must be really annoying for you. Looks like it's something we will just have to accept, doesn't it? Thanks for your reply.

Cullimorer profile image
Cullimorer

Hi Carol, I've only recently started getting Raynaud's symptoms and have had lots of tests to see if there are any underlying issues, all bloods have come back normal and nailfold capillaries are normal other than a slight burst capillary. Also nerve tests came back normal. I get pins and needles, numbness and generally weird sensations when I touch things in my left hand and similar symptoms in my left foot. This on top of the usual Raynaud's stuff. They haven't found any explanation as of yet and it kind of feels like a waiting game - if symptoms worsen they will have a better chance of diagnosis.

Please let me know if you find anything out about your symptoms.

Good luck with it!

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