cold face: I have systemic sclerosis... - Scleroderma & Ray...

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cold face

Oleander1 profile image
4 Replies

I have systemic sclerosis, Raynaud’s, and fibromyalgia (plus other stuff). I also have stiffness and aching on the right side of my face neck and shoulder which I think is myofascial pain syndrome. However, those areas also feel very cold as though I am sitting in a draught . It can last for several hours in spite of scarves etc. The area feels cold but is not cold to the touch. Constantly applied warmth eases it. I cannot find this symptom on any related site. Does anyone else suffer from this cold sensation and know what causes it please?

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Oleander1
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Midgebite21 profile image
Midgebite21

It could possibly be down to some kind of nerve investment especially if your having stiffness in your shoulder area. Maybe an entrapment. Have you seen a physio or other bodywork professional?

Oleander1 profile image
Oleander1 in reply to Midgebite21

I think this is a good plan. I have sent an email to to the rheumatology helpline at my hospital but probably won’t hear for a while. Thank you for replying.

LadyTrundle profile image
LadyTrundle

I too was going to say it could be nerve trap/ sensitivity. Try doing lots of shoulder tools, stretching g and loosening - and don’t spend tools g sitting in one position, or hunched over, and especially not poking your chin forward to look at your laptop / iPad through the bottom of your varifocals (my bad habit!).

If you google shoulder physio exercises you will probably find videos or diagrammes.

Oleander1 profile image
Oleander1 in reply to LadyTrundle

Thanks for getting back to me. I do a little yoga most days to keep my muscles as flexible as possible. Definitely having a Raynaud’s flare up just now and finding it hard to keep warm generally. Might be good to try some physio exercises.

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