eye problems with Scleroderma

[Sowze]

I was diagnosed with diffuse cutaneous scleroderma in 2018. Currently no treatment but I suffer with dry eyes which have become worse over the last few weeks very itchy and feel tender over the eye ball and eye lids also have dull headache over frontal area above eyes. Anyone have any suggestions? I’ve contacted my rheumatologist but am awaiting a response.

[volvox45]

Until you get a prescription (hopefully) from your rheumatologist, there are lots of OTC eye moisturisers that may help. I use drops at night because that's when it really bothers me – "Artelac night eye drops" which I get from Superdrug.

[Sowze in reply to volvox45]

thank you for your help. Sx

[Mimi273]

Take the borage oil, it help me very much. My ophtalmologist recommended and it really work. I take nordic naturals.

[Sowze in reply to Mimi273]

oh right, thank you never heard of this….how do you take it?

[Mimi273 in reply to Sowze]

Very good, it help me for dry eyes and skin.

[LadyTrundle]

I use Hycosan Extra - the red one. Ophthalmologist recommended. You can’t OD it so I use it whenever they feel dry. An SRUK webinar on eye health also suggested: using a heated eye mask for 10 mins or more when you get up and before bed (at least), ideally having first applied eye drops. And using room humidifiers once you’ve put the heating on - containers for water you hang on the radiator. Or bowls of water above the radiator. Keep them topped up. Esp in the bedroom.

[Sowze in reply to LadyTrundle]

many thanks for the advice

[Magicmaz]

Hi Sowze I have the same condition and I have had eye drops which I can administer up to eight times a day and they really help G.P. can arrange that for u hope this helps

[Sowze in reply to Magicmaz]

hi magicmaz many thanks for this

[Hidden]

I suffer with dry eyes too. Sometimes they are so bad, my vision is affected. I use Hycosan drops from the chemist and apply them whenever things get bad, several times a day.

[Sowze in reply to Hidden]

thank you for your response

[Krazykat26]

I use Hyloforte eye drops during the day and Xalin nighttime gel at night..both now prescribed by GP. I originally bought the Hyloforte drops online. I have recently invested in a humidifier and a heated eyemask n both of them were worth every penny! 💜🌈😽😽Xx

[Sowze in reply to Krazykat26]

thank you so much, everyone has been so helpful I really appreciate it 🧡

[Sowze]

thank you for all the replies I’ve received…all very helpful much appreciated.

[Shorty100]

hi I started with really bad dry eyes a few years ago and my GP said I needed to see an optician They immediately diagnosed dry eye and sent the details to my GP that day and I have a recurring prescription for Hyabak drops which are brilliant. It may be worth asking your optician to check your eyes if you can’t get in with your GP as opticians can also prescribe

[NZHeather]

A good video about management of dry eyes youtube.com/watch?v=Yuyev1-...(Not working as expected?)

[Chakula]

I highly recommend Artelac eye drops by Bauch + Lomb who have been going for many, many years.

My eye specialist recommends using Artelac morning and evening even if I don’t have dry or scratchy eyes at the time - to irrigate them.

You can use as much on your eyes as you like. In fact you should bathe them well.

Easily available, also on Amazon. Which reminds me I must order some more!

[Carolanne]

yes I have suffered for past 7 year’s

I have tried various drops over the years on prescription from consultant but best one for me is HYLO-FORTE intensive lubrication preservative free and phosphate free