what's the best dose and treatment for GERD - mine has gone all out of control for some reason. Tried omeprazole, lansoprezol and esomperazol (it's all not working) what are the best doses of omeprazole to keep it under control?
Also I have delayed stomach emptying and I'm a bit reluctant to take metclopromide does anyone have any natural helps to this or even if I just do a course of metaclopromide til it gets back to normal (read a lot about it being dangerous to take for more than a few week)
I think I have Sibo undiagnosed also (gp refered me to gastro but that will be months)
Any advice on how to get this all or in some part under control as I have acid 24/7 and fullness all day for the last month 😩.
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The acid reflux was making me miserable and destroying my teeth. I had tried everything. I was living on 2 lots of omeprazole, endless gaviscon, a lot of yoghurt and ice cream, because It was all of the tools left in my toolbox. Out of desperation mid May I cut back to only eating fruit, veg, cashew nuts, cheese, fish, eggs, the occasion bit of chicken The difference is astonishing. I still get patches of burning, mainly fixed with gaviscon, or yoghurt, but NOTHING like it was. I am banning no foods, so will have days where I-eat things that my body tells me I should not. I have also lost 2 and a half stone, so that has helped my knees at 56 I have never managed to shift weight like this. Looking back I was burning so often and so miserable that I would throw down anything (often bread products) to give the acid something else to eat other than me! I have no idea why this is working , possibly a food sensitivity ?gluten, or wheat? And I don’t know how long it will work for, or how long I can maintain it for, but for now it is a welcome respite.I hope that you find something to help
The NHS is now treating patents who have C Difficile where antibiotics no longer work via faecal treatment. Sounds more unpleasant than it is, as it is basically only the transfer of gut microbes from the healthy (probably young) to the seriously unhealthy. Is achieved via a colonoscopy & may soon be (or is already) available in pill form.When I read this recently I immediately thought that it might help some scleroderma patents, especially those with stomach problems.
It sounds quite safe if properly screened as it would be if administered by the NHS & is not complicated.
Hi, I started netroclopramide recently after months and months of struggling with different types of diet to fix the problem (nothing really worked!) Consequently a huge amount of weight loss because of being unable to eat, being totally miserable and even having to miss work on some days. Although being told to take 3 tablets a day I'm only taking 2 because I'm so underweight but oh my goodness, the difference! I actually WANT to eat now! OK I'm still being very careful and if symptoms start I stop eating immediately and wait until they go before continuing, but I'm actually beginning to enjoy life again. At least give it a try. Only the people who have issues will post not those for whom it works!!! Good luck x
I was told to try to reduce it to once a day when I felt ready and while I hate taking meds at the moment they improve my quality of life so much I'm happy to stick with them. I have found that if I stop taking anything the adverse effects take a good while to kick in, so only ever reduce anything v v slowly. What adverse effects are you worrying about? X
Just the Parkinson's like effects of long term use and that it can cause irreversible muscle spasms especially of the face. And I get confused in the medication is supposed to kick start your stomach back to working or if you need it all the time to keep your stomach working x
Sorry I am not qualified to answer these for you. I think you need to talk about your concerns to whoever prescribes your meds. Whether you are 37 or 67, they will have had their reasons for suggesting it and much better info about any possible side effects. Write down your questions before you go in there so you don't forget anything and don't be afraid to ask, remember there is no such thing as a stupid question or concern. I just know that for me it is working well, and I notice the difference if I don't take it. For me, it's improved my quality of life hugely. People are different, but please talk to your doctor!
I have SIBO caused by limited Systemic Sclerosis, reflux, slow mobility and all the usual gut problems with significant weight loss. I was given antibiotics by my rheumatologist and my gastroenterologist did the usual endoscopy etc where they find nothing but delayed emptying, reflux hiatus hernia. He put me on a waiting list for SIBO breath test but I knew this could take months and the hospital was recovering from COVID. I consulted a herbalist/nutritionist privately. The treatment she suggested didn’t really help but she did arrange a SIBO breath test which was positive. I gave up seeing her as the herbal treatment didn’t help but because I wanted to spend the money elsewhere (physio, massage). She was about to arrange stool tests for parasites etc which may have been useful but there is a limit on spending with these conditions. The test cost about £100. You may even be able to organise direct. I might be able to find the firm if you would like me to send you. I believe the hospital was pleased I had the test done. Otherwise I’m sure if your symptoms are or get worse they will trial antibiotics for you. No SIBO test is full proof. Hope this helps
Wondering would a smoothie and a scoop of protein powder be helpful with weight loss, trial and error innit a gluten and dairy free one and make it mostly water based with spinach bullet frozen department Tesco etc little chopped celery,carrot, ginger few slices apple, teaspoon oats GF ,chia seeds and crushed seeds with protein powder. I can't tolerate fruit types to acidic
I can relate well. Domperodone was the prokenetic I plumped for over Metaclopromide finally. I can take 3 per day but opt for 1 most days now and no side effects for me.
I’m on 20mg esomeprazole and 40mg Famotidine twice daily.
I am on a low fodmap diet which isn’t great - so restrictive - and not what my dietician recommends for my gastroparesis. But if I break with it then I always pay with loads of pain and misery.
I’m prescribed a liquid nutritional supplement which i manage half a bottle of a day along with a homemade fruit smoothie milk shake and rice cakes with spreads eg tiny amount of organic smooth peanut butter or low fat cream cheese or a salmon spread. I can eat some mashed avacado which I hate but it’s healthy. I seem to react very badly to any onion, garlic or hot spice even in powder form. I have some dark chocolate and try and put ground or finely chopped ginger in things too help with the nausea.
I use a colonic irrigation system daily now and this means I can have minimal amount of liquid senna - the only laxative that doesn’t make me incontinent.
The worst thing has been silent reflux which makes me cough and choke and gives me a horrible taste. I think I have SIBO too - judging by bizarre noises coming from my gut and flatulence I never had previously until about 6 months ago.
I was diagnosed with severe Gastroparesis 16 months ago and severe slow transit colon - but only see a gastro first time at the start of September! I have made several complaints about this but in the end I have learnt to self manage it in my own way and through asking on forums for GI dysmotility.
All very frustrating as I know they prioritise patients with IBD because there are treatments. I see this when I get my Iloprost and most people on my infusion bay are getting biologics for IBD. Yet I’m the one sipping my supplement and refusing the hospital food and running in and out of the toilet with my drip stand! I do feel CTD/ scleroderma patients draw the short straw with gastro where I live. But I get by on my fruit smoothie milkshakes and chicken and rice soup. No veg or salads or pulses though - which I miss horribly. Also I avoid all red meat and full fat cheese/ dairy and wholemeal grains, acidic fruits etc.
I’ve been on metoclopramide for years. I have SIBO, so I also take three rotating antibiotics (each for two weeks before rotation).
The trouble with slow motility of the stomach and bowel forces food, or waste to push up on the eosophagol sphincter, in turn causing stomach acid to go up . We can feel it with the burn. The danger is when we sleep because we don’t necessarily wake and at that point stomach acid can be aspirated into the lungs, causing or worsening lung fibrosis.
Please talk to a specialist gastroenterologist. I see an excellent one at The Birmingham QE, but also saw a great one at The Royal Free.
A homeopathic- trained osteopath once suggest Slippery Elm Bark (powder, mixed with water) for reflux and heartburn. But I never got round to trying it - had gone for excruciating, disabling back pain and hadn't the headspace for dealing with other things than the pain. And now I'm paying for so many scleroderma- required other supplements, I continued to pick my battles. And TBH my heartburn is managed well enough with 20mg omeprazole twice a day. Just wondered - does everyone make sure to take it on a relatively empty stomach, and around 30 mins before your meal? For the first few year of taking it no one told b=me that - and I was throwing it in my mouth at the same time as gaviscon, unaware that they cancel each other out!
And another thing - am I the only one whose GERD is distinctly worse if I lie on my left side?
Yes good point ladytrundle. I think a lot is to do with when you take it. I’m struggling just now but it’s been the holidays n my medication taking been all over the place. Im on 30mg lansoprazole n famotadine twice daily n if I take them a good while before food they usually are enough to help if I eat sensibly.
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Limited Scleroderma, Skin Problems - Delayed Contact Dermatitis
Stomach Issues
