Methotrexate : Hi Ruby Robs, I have... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Methotrexate

Oscar_20 profile image
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Hi Ruby Robs,

I have circumferential Morphea with fasciitis. My elbows, wrists, fingers, knees and ankles are affected - bent and locked, my skin between the joints is hard/inflamed. I’ve been taking methotrexate since February 2020 - injected weekly 22.5mg as well as other immunosuppressants; Mycophenolate Motefil, Hydroxycloroquine recently replaced by Cyclosporine & prednisolone. My elbows & fingers are pretty much back to normal, my wrists have improved a lot. But, my knees & ankles are no better yet! In my case the treatment I’m on is very slow to act on my legs, very frustrating. I don’t suffer many side affects, I have diarrhoea & headaches after the methotrexate. I take gabapentin for the pain in my legs. What is your diagnosis - Sclerederma - my condition is similar but not the same. Hopefully you’ll see improvement after a few weeks.

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RubyRobs

Thanks Oscar, great to hear about the improvements you have experienced, I hope the same happens for your legs and ankles to. It is uplifting for me to hear that such improvement is possible, I am hopeful that some of the restrictions to my movement will reduce as the Methotrexate does its job.Best wishes, Ruby

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