Raynaurds

[Brand1985]

Happy new year everyone. Does anyone suffer severe sweating on body and head with there raynaurds? I have very severe raynaurds in hands and feet and they are always swollen, red and very painful!

[sarahsch]

Hi Brand1985,

I also suffer Raynaud's although mine is not severe. It affects my lungs and I take diltiazem as a result. This can have the side effect of causing hot flashing, although I only experienced this for a short time after starting treatment. As I understand, it is a vasodilator. It opens up the blood vessels to allow more blood to flow to your extremities, and presumably to other parts of the body which are already sufficiently warm and hence you feel too hot in these places.

I wondered if you take any medication which might be causing the sweating?

Sarah x

[Brand1985 in reply to sarahsch]

Unfortunately I'm unable to have anything that opens up the blood vessels as I have blood clots in my legs! I have been warned against it as I could die! So I'm in constant pain and discomfort which is hard psychologically and mentally too.

Thank u for ur reply

Laura

[Flouzet]

Yes, I do but have been told it is most likely allied with my heart condition with the scleroderma and also possibly a reaction to the morphine I am on. The sweating is worst when I have been overdoing it so the explanation seemed reasonable to me, but maybe not, from what you are saying...

[Brand1985 in reply to Flouzet]

Hi thanks for ur reply! I'm also on suboxone which is morphine based! I seem to sweat doing nothing which is annoying! I've also had a bellpasy stroke 5yrs ago which left my face dropped on one side!

Laura 😊

[frillyhilly]

Hi, I have Primart Raynaud's and I am in my 50s and I get hot flushes (day and night) and they are, to put it mildly, a nuisance.

With clothing I either where a lot of light layers (a bit like in summer when it's really humid) or I wear one warm jumper that I can easily slip off when I start getting getting hot and on again as soon as I start to cool down. I also no longer wear turtle or roll neck jumpers, instead I use scarves to keep my neck warm which are easy to take off when I start to overheat.

The other thing I find useful is a traditional "hand fan" - my husband picked up a lovely Edwardian Style one for me. I can direct it eaxctly where I want it and it gives such a good "waft" of air I don't have to keep on and on and risk a Raynaud's attack.

I hope you find a way to manage this very soon, N xx

P.S. I'm also experimenting with wearing a cardigan instead of a jumper (so I will be wearing base layer, cardigan, cardigan, wrap). I fasten up the "inside" cardigan so it works like a jumper. Then if I start to feel hot I can unfasten the front to allow me to cool some. I'm still experimenting with this, but it does seem to help.

[Brand1985]

That's all really interesting thank u! I wear a lot of 100% cotton tshirts mainly even in the cold I have tshirt and thick gloves on! I shall get myself a fan or a little hand battery one! I tend to drip with sweat from my forehead and back of my head is always soaked! The doctors told me it's due to the raynaurds disease causing the blood to remain in my body and head which in turn makes me sweat lots! Are u on a y medications for raynaurds and or the sweating?

Thanks Laura