strange taste and smell

[Abbybobtim]

I have limited scleroderma and recently lost my sense of taste and smell and now I have a sense of taste and smell that is absolutely awful, everything tastes like nothing, please has anyone else got anything like this.

[Joan59]

Hi I feel for you. I have LSS for the last twenty years and have found that I to at times can smell things other people can’t smell and I also have a metallic taste in my mouth at times and may I add that these come and go but can be there for about a week when it happens so your not alone. No explanation has ever been given as to why.

[Abbybobtim in reply to Joan59]

thank you so much for your reply, hopefully it will go eventually because it certainly is unpleasant.

[MissusTee]

Sounds like a sinus infection.

[Zazzel]

Have you had your potassium levels checked? Acid reflux and heartburn can a.so cause this. You’ve probably already checked these, but just thought I’d throw it out there.

[Abbybobtim in reply to Zazzel]

thank you for your reply, had not thought about potassium levels, will give that a go. also I do suffer quite a lot of Acid reflux and heartburn. thank you once again will really keep my fingers crossed for this test

[Zazzel]

I'll keep my fingers crossed for you too.

[marilynmcl]

I have had the same thing on nasty taste ..not so much smell, I love diet irn-bru but couldn't drink it for ages because it tasted awful...same with food...lost a lot of weight through this, but eventually it did fade away and I could try my favourite drink again and it was okay! So, hopefully you will get your sense of taste back and you will feel a bit better...best wishes pet.

[Abbybobtim in reply to marilynmcl]

thank you for your reply, like you everything tastes like nothing, certainly not what you put in your mouth or what you remember it should or did taste like, all I can say is I hope my sense of taste returns sometime soon.

[Halfwayuphill]

Hi Abbybobtim,

I had this when I first became ill about 18 years ago. Suddenly developed Raynauds, choking on food, fatigue etc. The good news is my taste came back! I’m not sure how long it took & it took me two years to get referred to a rheumatologist and then I was prescribed a PPI which could have helped. I’m still left with the muscles disfunctional in my oesophagus and at the same time I lost the ability to sing which really upset me as I was in a choir then. But luckily the taste came back so I hope it will for you. I particularly remember tea tasted vile!

X

[Abbybobtim in reply to Halfwayuphill]

Hi there, thank you for your response, as you mentioned the oesophagus it reminded me of my operation I had to have regarding the muscle at the base of the oesophagus, hopefully this is not part of that returning, just hope the taste returns sooner rather than later as cannot enjoy food as you should be able to, the loss of smell I is something I guess I can over time get used too.

[Blue_feather]

Hi there,

Yes! I have had no sense of smell for over a year and virtually no taste. I have recently seen an ENT registrar (been on a waiting list for over 6 months) who has prescribed a nasal spray for 3 months and he will also do a CT scan.

I was wondering if it has anything to do with anything autoimmune, but my GP and rheumy don't think so and the ENT guy said he'd have to look it up!

[Abbybobtim in reply to Blue_feather]

thank you for your reply, as you stated your ENT registrar prescribed a nasel spray which my GP has prescribed for me, obviously not sure if we have the same one, mine is Flixonase hoping it will work as no sense of smell and taste as I'm sure you agree with is definately not very pleasant, we have enough of everything else. keeping fingers crossed

[Abbybobtim]

thank you for your reply, as you stated your ENT registrar prescribed a nasal spray which my GP has prescribed for me, obviously not sure if we have the same one, mine being Flixonase hoping it will work as no sense of smell and taste as I'm sure you agree with is definately not very pleasant, we have enough of everything else. keeping fingers crossed.