Going numb?

[Gingerbeets]

Hi there,

Is anyone else experiencing numb patches? I’ve got increasing numb areas on my back and now on the outer side of each calf?

[marie5454]

Hi Gingerbeets

Yes, I have a numb patch below my right knee which has spread a little more, prior to that I had very itchy knees, I get very itchy feet too on the top and I'm a bit worried numbness will affect them. There's also a tight feeling around my left foot which someone said could be neuropathy. I have had odd numb patches elsewhere, thigh, hip so I'm wondering if there is some nerve damage going on. I have had Raynaud's since 2016

[Gingerbeets in reply to marie5454]

Hi Marie

Yes I feel like it’s a nerve damage thing too. The areas affected are definitely getting bigger. I’ve only recently been diagnosed with Ehlers Danilo’s syndrome too (which I had no idea I had but which explains a lot) and am not sure whether it’s connected to that or the scleroderma!

[marie5454 in reply to Gingerbeets]

Could be, if it is nerve damage, sounds like a circulatory disorder and Erhlers is a connective tissue disorder isn't it? All auto immune by the sound of it, it ends up being one thing after another with that. Hope you get some answers from your GP and some relief too!