Little walk or little activity makes ... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Little walk or little activity makes me breathless stomach floating with Diarrhea.

Nurmohammed profile image
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This is going more wars since last 3 weeks did concert gp same time when this suddenly started go first send for chest X-ray no precipitation concert gp after 4 days emergency doctor check my condition and prescript antibiotics it’s not help contact gp again ask for blood stole urine echo taste which is already done on emergency from permed. concert gp for result still not arrived need to call again if come on tomorrow or Tuesday! So it’s not easy for me to suffer on scleroderma with others problems which is kidney transplants from sister Donets after 8 years on dialysis nhs hospital doctors can’t put on kidney treatment waiting list because off scleroderma that’s why my sister donated since more than 8 years that’s why I ask all hospital doctors and gp to please don’t ignore because I don’t want to lose my kidney. But well don’t know what’s out comes on scleroderma condition which rare illness as I know when I in hospital there is so many doctors come to visit me. Still so many Gp or doctors not know what is systemic scleroderma sclerosis’s!!! This is not common illness to understand any one gives you advice or treatment! Just hope on to one day come ether good or bad who’s knows! I can depends on royal free Hampshire London they also know about my condition kidney lungs hearts lots more so many times complete about breathless it was long time effects gone for lungs test when you ask to doctors they’re just stay-bale which figures they follow don’t know! Now gone wars for me and I’m suffering who’s responsible for my kidney and other condition! I don’t know what next they do for me because it’s going wars and wars! Thanks my friend to you all for reading I know I just said to thanks to friend can’t see any doctors to comment on my condition!

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Sanmateogirl107 profile image
Sanmateogirl107

tumerick, probiotics help knock down immune disease ask your doctor. dietician, meditation, go get another opinion. julie

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