My dad's just been diagnosed - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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My dad's just been diagnosed

Funnymango profile image
6 Replies

Hi there,

So my dad's just been diagnosed with Raynaud's and I wanted some advice on how to best support him as I'm the oldest child out of the three of us I almost feel like it's my responsibility.

I don't know what to say or how to approach the subject or even if I should some advice would be really appreciated

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Funnymango profile image
Funnymango
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6 Replies
pigeonCl-HU profile image
pigeonCl-HU

Hi Funnymango, it might not be as worrying as you think; however, it is important that you know whether it is primary or secondary Raynaud's?

This would impact on any further treatment, as primary Raynaud's , in most cases, does not require any medical intervention.

The best support is to keep the environment warm, and shield the hands from the cold, (warm gloves), whenever he goes out.

Best wishes for your dad, plze let us know how he gets on.

Freerange profile image
Freerange

Hi

I have Raynauds and the best thing I have for keeping my hands warm are Steptoe-style mittens. I got recycled cashmere ones here: turtle-doves.co.uk/collecti...

They're brilliant, as I can wear them all day, but the design means it's easy to get hands free without taking them off. I just pull them back up my arms if I need to wash up/go to the loo etc etc. Best thing I ever bought.

pigeonCl-HU profile image
pigeonCl-HU in reply to Freerange

Freerange, thanks for the info about the gloves+link, very helpful.

amd21 profile image
amd21

Hi there as others have said the key is finding out which type as its its primary that is just Raynaud's its painful but benign. If its secondary that is a symptom of something else (normally an autoimmune disease) then its something else. If its new and it sound like it is then it's most likely secondary. The RSA website sruk.co.uk

Has lots of advice. Managing rays is straightforwards and there's meds that help too others here can support I developed rays as a 48 year old man so know what its like. I had to wear gloves a lot and sleep in these until meds controlled it brandedoutdoorclothing.co.u...

Lots helps get him to read up.

Julieb432 profile image
Julieb432

A neck warmer like this is amazing. You can usually find them locally. If it has 3 sections it holds its shape best. I've been using mine almost all day every day this winter around my neck and I can use it to warm my hands and feet whenever needed.

The wrist warmers suggested above are also great.

amazon.co.uk/Elephant-Neck-...

I had remote start in my vehicle for years which was good. Now I don't have that but I have heated seats which are great.

Funnymango profile image
Funnymango

I would just like to thank everyone for there advice and suggestions and I'll all let you guys know how he gets on

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