Scleroderma & Raynaud's UK (SRUK)

Found a venue for meeting in Birmingham, who wants to come?

Hi Folks, after seeing a couple of places yesterday (Friday), I think I've found somewhere that is quiet enough to speak/chat and be heard but busy enough to just sit and look at the world passing by outside (if you don't want to talk etc). It's the Railway, Savoy Buildings, Hill Street, Birmingham B5 4AN. It's cheap so ignore the expensive sounding building name. It's situated just outside one of the entrance/exit points of Grand Central train Station. It's now a question of who wants to come and when. If you want to throw some dates and time scales and we can all get a plan together.

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Which month did you think you would hold it? I have a very busy April May. Moving house 17th April then 4 days in London. In May another 5 days in London then family staying for 2 weeks. Will try and fit in and around you all.

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Hi, I don't know at the moment. All depends on who else is coming. I was open on when to meet, so April or May or even June. I think if we make a plan and date, it'll give folks time to put it in their dairy's etc. I'm keeping it open minded so I can get as many people on board with this meeting. If there's only 3 or 4 of us, so be it. Something to look forward to I think.

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Hi folks

For me it would have to be half term. Last week May.

Frances

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Hi Frances, what dates are half term ?, as different areas have different dates, hope you know what I mean lol

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Hi there. I live in Kent but would love to come along please.? What great a thing you are doing. I would be limited to a Saturday unless it was in the school holidays. Then any day should be fine. May half term, or after 12th July. Then off school. B good to have a date in diary. Be so great to speak to you.

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Hi Fuchia, I have another person asking the same (meet in half term) so that seems to be to vote lol. When are your children's half term dates?

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Hi there. H/T Monday 21st to Friday 25th May. Do hope this works out with other people. Be so lovely to chat with people that understand our condition. X

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I hope it works too because it's easy to type and once you press send, that's it, it's all over till a reply comes. With a group meeting, it's much more I think. You can put a face to the name so to speak and relax in an informal atmosphere. Just need to get folks on-board with the idea, I know it's scary and stressful at first, but after the initial few scary seconds of meeting, I'm hoping it'll be a heck of a more relax setting and folks can chat, chill out and just have a nice time, weather it be with food, drink or just to show a face and say hi.

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Totally agree with you. 'It's good to talk.' So the old to add use to say. Showing my age now🙃 If it all works out. It would be great todo annually or something. I meant to say about school hols. I don't have children but still teach part time a few hours a week. While I can, I will. I enjoy it and more than anything the children cheer me up. look forward to hearing from you. Bye😊

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Just checked half term dates and it all depends on where you live, it looks like it starts either the 21st or 28th May. I think meet 1st August when we'll have to most opportunity to get most folks as no school and plenty of time to relax and look forward to it. Any thoughts would be greatly welcomed?

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Hi

Sorry not responded - I have been on holiday. Venue sounds good, a Saturday would be helpful and I would really like to come if a date is decided. Thanks.

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Hi Jen3131, no need to apologise, we all need a holiday. Hope it was lovely wherever it was. I think Saturday's might be busy at this venue but I'm open to doing it Saturday if it helps.

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I went to Spain. The weather was perfect for me - not too hot or cold. So very little Raynauds impact and my hands were less swollen generally.

I guess a Saturday might be too busy. I could book a day or afternoon off with Notice.i couldn't come on a Thursday or Friday though.

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Glad to read the Raynauds was kept at bay. I'm just waiting on a reply from a job interview I went for, soon as I hear from that, I'll be in a better position to say what day.

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Lovely and fingers crossed for the job 🤞

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Hi Jen, I got the job, phew. I'm not going to book the venue as I don't think it'll be that busy but think 1st August is best. I'll make a new post to that so all can see it, in case someone misses this post lol. Phew , we have a date sorted for the diary, now just need top get folks to come. x

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That's good news - congratulations. I have put the date in my diary. Even if my work colleague is off (school hols etc) I could could work a part day and get to Birmingham for 1pm. Thanks

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I was going to suggest a meeting time of between 12.00/1.00pm and then we'd all have the afternoon to chat.

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Hi Avtargill, sorry for slow reply. Only just seen your message. August works for me. As you, more people might be able to join us. Friday/Saturday would be best, but any day would be ok. Be great to get a date in the diary. Be really good to look forward to. Thanks a lot x

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Just seen Jen's reply and about how busy a Saturday would be. So forget what I said about Fri/Sat. Any day will do me my love.

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Good luck with job too. Haven't got my act together this evening with reading the replies. Going through a bad spell at moment. Blemish it on that xx

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Hope your bad spell gets better soon. I got the job, yippeeeeeee lol. I'm not going to book the venue as I don't think it'll be that busy but think 1st August is best. I'll make a new post to that so all can see it, in case someone misses this post lol. Phew , we have a date sorted for the diary, now just need top get folks to come. x

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Fab news on job🤗So pleased for. Busy time coming up for you then. At least weather is improving.Good all around😉I am so looking forward to meeting you and the others. I will be there on 1st😜 It is great that you have taken trouble to arrange this. Thank you. Looking forward to my day out from Kent. I think you wrote originally that the venue is right be the Birmingham Satayiob! Is that right? I'll google it anyway. No props. Do you have Scleroderma too? I have. Just wondered if anyone else attending may have !!! See you soon. X

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Busy times indeed and looking forward to it lol. I'm not sure what the Birmingham Satayiob is? It is right by Birmingham New street train station, I think they call it Grand central station now as it's all been done up. Look forward to meeting everyone too. I have secondary Raynaud's.

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Told you it isn't a good spell😏 Don't know what Satayiob is myself sorry! Supposed to read ' Railway'🤗 Predicted text..... or just me...., you decide. Is your secondary Raynaud's related to auto immune? X

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I'm not going to book the venue as I don't think it'll be that busy but think 1st August is best. I'll make a new post to that so all can see it, in case someone misses this post lol. Phew , we have a date sorted for the diary, now just need top get folks to come. x

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1st August sounds great for me. Coming across from Shrewsbury. Looking forward to meeting you all. Xx

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That's great news.

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Hi Folks. I haven't been on here for a while (about a month) and seems like an age ago. I have 3 folks confirmed as coming and wandering if anyone else who might have missed my post would like to join us? I don't if anyone can search or read my past posts so will copy and paste here too, just in case.

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Hi, sorry for the delay in replying, I don't seem to be getting notifications when I get a message. My name's Avtar Gill, not a well thought out user name lol. I'll message you my number as don't like to put it on here, just super security conscious.

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