Hi, I'm 23 and I'm currently in Royal Free's kidney unit after a check up 4 weeks ago. Turns out i had a chest infection that turned into pneumonia and my kidneys Had began to pack up. By some unlucky twist I was only 5 days away from the year anniversary of my Scleroderma renal crisis.
On 2nd March 2017, I started vomitting a lot before complaining I'd gone blind. My parents drove me down to A&E where I was taken for a CT scan (they thought there was something wrong with my brain causing the blindness). Second I got into the CT scanner I had a cardiac arrest and was dead for 8 minutes.
Since then I've had to learn how to walk again, learn how to swallow, I had a catheter inserted so I could dialyse at home after my kidneys failed and I've had more heart and lung tests than I can count.
I'd hoped to be done with the long hospital stays by now but they seem to be never-ending. I just wondered if any of you guys have much experience with kidney involvement and how your quality of life is