Is it normal to still feel stiff still? 😓 I.hate this

[Susanissufferingtoo]

Hi, I'm new to this website. I just got diagnosed Feb 21 this year. I also have fibromyalgia and that was enough! I'm also on oxygen. I have copd but My.doctor believes it's these conditions is to why I'm on oxygen. I don't have much support or understanding. Please share what you can.

[Intimeslikethese]

For what it's worth, adequate hydration (water intake, green tea, black tea, decaffinated) with gala apples seem to help my joint stiffness.

[Susanissufferingtoo in reply to Intimeslikethese]

Thankyou for the response. ☺

[Hidden]

Everyone seems to experience scleroderma in varying degrees but as I understand it everything tends to settle down after the first couple of years. That’s been my experience, just over 5 years now - my doctor explained that the first 5 years is a good indicator as to how the disease will progress over your lifetime. Things generally settle down - I had crippling hand pain for a year or two and now no pain at all.

[Susanissufferingtoo in reply to Hidden]

Really? I just found out I had it in Feb. Scary..... I have red dors taking over my face now. It has taken some of my lips already too! I hope it calms down

[Hidden]

Having said that, if you’re feeling stiff and struggling to move you need to ask for physio help to keep your joints moving etc - maybe worth asking your doctor?