I was diagnosed in 2006 with diffuse scleroderma, which progressed at an alarming rate. So in 2011 after being on many medications it was still very aggressive and I was offered to go on a clinical trial for 2 years. Fantastic result , before the trial I was virtually in a wheelchair 24-7. And by the end of the trial I was vastly improved making the wheelchair redundant. Now nearly 2 years on things are going backwards.
I would like to know if anyone suffers from sickness. Mine started about 3 years ago and only happened occasionally but has now escalated. In the last month I have been violently sick 3 times now. My tummy is blown up like a balloon and prior to being sick I can only describe the feeling of there being a blockage. I am then sick many times and following the sickness I have the runs which seem to continue until I am totally empty , it can be up to 3 days before I feel well enough to eat again.
Could anyone tell me if this might be scleroderma related .
Many thanks Lindy. X