Jia and scleroderma

[1aoife22]

Hi, I am new to this site so bear with me. My soon to be 5 year old has juvenile arthritis and has been diagnosed with localised scleroderma just last month. I am wondering if there is any one on here in the same position? ?...

[dramatic]

Hi, sorry to hear about your 5 year old. My daughter is 14 and was diagnosed with localised scleroderma at the age of 6. There are a group of parents who are in contact on a Facebook page if you would like to be added, it is called scleroderma support for parents and carers of children with scleroderma. This is a new page but will enable you to make contact with others in the same position. 

Hope to hear from you ! 

[1aoife22 in reply to dramatic]

Great will look that up now.How is your daughter Now? 

[1aoife22 in reply to dramatic]

Just joined it now thank you 

[mum2threegirls]

My now 6yr old daughter was diagnosed with localised scleroderma at 4yrs old. She has the generalised form.  She has been on treatment for almost 2 yrs and it has really helped to stop the progression and has also reversed some of the damage.

Where does ur little one have patches?