zenabb

I would not call it remission. It is certainly cyclical, comes and improves in cycles.

Natasha1975 in reply to zenabb

So if it is cyclical, I wonder if people were more in tune to causes, i.e. what they eat or do, that they can keep it at bay?

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zenabb in reply to Natasha1975

Yes, I am sure that we take the precautions we can and gain experience as we go along.

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Noni1

I was diagnosed with Crest 10 years ago and have to say am mostly healthy with some flare ups of Raynauds but I do get very tired. I can go for months with nothing then the fatigue catches up with me. Annual checkup next week so I keep my fingers crossed.

Best of luck

Natasha1975

Non1, that is great news!! Do you have any internal damage? are you being treated at all? did you make any significant changes to your life (i.e. eating) when you were diagnosed that you can attribute to your remission? I am just wondering...thank you!!

Yorky

Hello, sorry, I have never had a remission. I have had raynauds for 50 years, with Scleroderma being diagnosed 30 years ago. During this time I have had a VERY SLOW increase in problems. I now have severe raynauds, swallowing, gut, bowel, sjorgens, lung problems etc etc. But still manage a fairly normal life, anyone first meeting me would think I was fit and healthy, I am very slim. At times it seems like just like one thing after another, but I manage to cope/deal with each little setback, I think it helps to keep a positive attitude, I see many people much worse than me. Best of luck in dealing with everything.