after a few weeks waiting, i finally ... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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after a few weeks waiting, i finally got it....

littlemissshy profile image
14 Replies

every day since my last dr oppointment i have been expecting to go home and find a letter there. yesterday i found that letter, i was overjoyed!!! i now have my first appointment with 'a specialist in rheumatology' on 27 of this month... so happy :-P

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littlemissshy profile image
littlemissshy
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14 Replies
sandycharlie profile image
sandycharlie

pleased for you....I had my 1st appointment on 4th june.....now got loads of tests to go through but feel so much better knowing I got it moving ...good luck and keep healthy..xxx

littlemissshy profile image
littlemissshy in reply tosandycharlie

yeah, ive already had a blood test, but at least i have it!! thanks, and you too!!

Irene55 profile image
Irene55

I know how you feel. Two years ago I got an appointment with a rheumatologist after I had suffered with pain in my legs and had got to the stage where I could hardly walk. My GP still couldn't see anything wrong but the surgeon who did my carpal tunnel operation could, and he referred me to the rheumatologist. I only had to wait 4 weeks to get an appointment and I am very happy with my doctor in the hospital.

I hope you have such a good one as mine.

littlemissshy profile image
littlemissshy in reply toIrene55

aww, im like that sometimes.... all the best :-)

nettie545 profile image
nettie545

It's so great when one finally gets some progress isn't it? I'm glad for you. I am still waiting for the Rheumatologist appointment. I've just had an operation on my foot. I had a huge Bunion on my big toe, and the cartilage in the big toe knuckle had worn away as well and my toe was moving over to the right and pushing my other toes over. I also have what's called Morton's Neuroma's between my toes, so they fused the knuckle, scraped the Bunion and cut the Neruoma out. The first night I had terrible pain, but since then, it's been much better and I know don't have the pain right up my leg that I used to have. Something connected to the Neuroma must have been pulling the nerve in my leg I think. Anyway, hobbling around on crutches for a couple of weeks and can't drive for 4 - 6 weeks! Yikes!! Going to get lonely and frustrated at home. Thank goodness I have all of you to talk to! Reading, watching T.V, and hopefully, getting visitors! Have a good weekend everyone. :)

littlemissshy profile image
littlemissshy in reply tonettie545

yeah, its great, two wekkes three days to go!! haha, aww poor you!! at least it seems to be getting better, i hope you had a good week end? all the best :-)

newbe profile image
newbe

So pleased for you littlemissey I too have finally got my app at the royal free on the 3 july isn't it strange that we are happy about finally seeing people who understand our conditions. Please let us know how you get on. All the best.

littlemissshy profile image
littlemissshy in reply tonewbe

yeah it is quite, is that london? apparently there are only two rheumatologists or something like that in either wales or britain....not sure which, still not many! will do, all the best, and haha thats ok :-)

newbe profile image
newbe

Sorry I spelt your user name wrong.

zenabb profile image
zenabb

Make a list of all your symptoms and the questions to ask and make sure you have asked them and got answers as far as possible. You will have tests to resolve some of the questions so don't expect the answers until the results come out.

littlemissshy profile image
littlemissshy in reply tozenabb

yeah, so dar im on number 20!!

Madge51 profile image
Madge51 in reply tozenabb

That's great advice.

newbe profile image
newbe

Royal free is in London everyone sings it's praises and I am very optimistic. Hope you get all the answers you need.

littlemissshy profile image
littlemissshy in reply tonewbe

okay thanks

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