Hi everyone : Hi everyone I'm new here. I was... - Sleep Matters

Sleep Matters

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Hi everyone

Sophiesmum290902 profile image
5 Replies

Hi everyone I'm new here. I was diagnosed with sleep apnea on the 30th of September 2024.

I have been diagnosed with lots of other health conditions as well as a mental health condition.

I was so shocked when I was diagnosed with sleep apnea that I was close to tears as I was expecting it, but the diagnosis was still a shock.

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Sophiesmum290902 profile image
Sophiesmum290902
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5 Replies
195fifi profile image
195fifi

Hi Sophiesmum290902

195fifi profile image
195fifi in reply to195fifi

I was diagnosed with sleep apnea in 2016. I was given a CPAP machine. I could not use it. I t hurt my face because of allodynia and my head felt it was going to explode. I am now getting an oral device to wear at night 2000 Euro. The dental man that makes these devices said it is very important to treat apnea as your body does not get enough oxygen at night and then you feel exhausted the next day. I am 71 this week and have migraine since I was 12. I was only diagnosed 13 years ago when I saw a neurologist and he said I have chronic migraine, anxiety and depression. All treatment that I have had including inpatient I have had no response. My Mother died very suddenly after her lunch in 2018 and he said my migraines went through the roof.Me and my brother were looking after her for 11 years. She was 95. I do not know what I would only for my brother. He comes with me to all my appointments. I also had 2 TKR. My right knee has come loose but surgeon said he could not put through another operation at the moment. I go to a physio every few weeks. I was with my rheumatologist as I now have fibromyglia in whole body caused by the migraines as the pain is so bad. I am now getting VYEPTI infusion, but I am not due to go to 300mls till end of January. I am seeing my headache doctor in a couple of weeks and I am going to ask can I go to 300mls in November. If it does not help me there is nothing else here in Ireland to try. I have private health insurance but I have lost count of how much money I have paid doctors and some of the meds. I guess you get your treatment and meds on NHS. I think you should talk to doctor about getting a CPAP or oral device . Hope this is of help. Regards 195fifi

Sophiesmum290902 profile image
Sophiesmum290902 in reply to195fifi

Ty for your reply 195fifi. It's very helpful.

My auntie, who is my mum's twin sister has fibromyalgia as does one of my best friends.

My dad passed away in March 2019 after a short but very bravely fought battle with terminal lung cancer due to smoking cigarettes.

Yes I do get my medication on the NHS as myself and my fiancé are on universal credit, although someone who replied to a post I did on another site called it "universal coffin", which made me laugh as I'd told the person that posted the comment that it's better name than universal credit.

Cowbsky profile image
Cowbsky

Hi,

It takes time and procedures on pressure adjusments, masks, and so on to adapt. However, in special a Bilevel CPAP, like mine, can save your life.

For me, was a real rebirth in 2017.

OSA causes soooo many health problems, including mental disoreders..

Please see everything you can coming from Dr. Barry Krakor on the relations between of non-treated apneas and ilness, fhysical, mental, etc.

And this apneaboard.com/forums/userc...

al the best

Littlecook profile image
Littlecook

Good morning I'm so sorry you have been diagnosed with sleep apnea, it's not very nice thing to have ,I've had mild sleep apnea for a number of years but I'm so tired and could sleep and sleep, I should be getting a call today with my new results hopefully I will get help .

Good luck and try and rest .

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