Morning I did rant a bit at the GP's office...my eyes look and feel really awful, told them these are the eye drops I need prescribed I am not going to go away....Sjorgens is a serious condition that can severley affect my sight, dud not choose this and expecting help from my doctor should not be sonething I have fight for.If I get the sa.e answer ireceived last week I want to see the practice manager. Wasnt nasty just firm, I went away for an hour came back and what do you know there was thr prescription! And a message to say when I next see the GP she will make an appointment with the opthomologist ...it really shouldnt be this way, pain and anxiety is bad enough, anyway results received.
This morning feeling slightly more comfortable, so feels like the drops are working.
Thank you all for the advice, got the drops suggested for day and night.
Enjoy your weekend and wishing you all well.
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Den73
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That's fabulous news Den 🤗 your persistence paid off!! Congratulations!! 👏👏👏I'm glad to hear the drops are working for you and I hope you're enjoying your heated masks too. 💜🌈Xx
Bravo. It's a fight for care but so much is available on prescription that it's worth fighting for. So glad you have an ophthalmology referral. They should give advice and prescribe the right strength of drops if you still aren't feeling your drops are working. They should also scan your eyes to get a baseline check which can be referred to each time you go to check for any changes in your eye. They should do a schirmers test too to see what tears your eyes are producing and also look at your meibomium glands to see if they're blocked at all. So pleased for you though. 👍👏
Thank you dg70 for that extra info when I go to the opthomologist....yes I think I am fast realising its no use just keeping quite. My eyes have eased but still itchy and vision quite blurred, so indeed will ask for all the tests you listed, never even heard of meibomium glands! Amazing what you learn when you enter the world of autoimmune diseases.....have a pleasant day.
Don't watch the videos of gland squeezing if you're squeamish😆 It doesn't hurt though and I always get local anaesthetic first before he does it. Be aware if they do anything like put dye in your eye (which they should do) you won't be able to drive home after. I'm not sure what the nhs do ophthalmology wise but what you don't want is an eye test you need an eye health check up. If it's not comprehensive enough then find a private eye clinic who deal with dry eye. You can also ask about punctal plugs to see if they are an option in your eyes. My eyes are blurry as my glands thicken up within hours of using the hot eye mask and with little oil keeping tears in it blurs your sight I've had blurry sight for several years now but with the right drops and treatment you should keep the pain on a downlow. I think with these connective tissue disorders the brain can also affect vision too. I still go to an optician every couple of years though for an eye test. You may find your sight may change a lot. My long sight is great but my near sight is hopeless which has happened over the last two years. Driving at night is a nightmare and I have found nothing to stop the glare so I just don't drive in the dark. You adapt. I wish you well and don't stop fighting for what you need to stay as well as possible.
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