Dry,sore,cracked lips.: So I have lozenges... - Sjogren's Support

Sjogren's Support

700 members178 posts

Dry,sore,cracked lips.

donnabrain profile image
8 Replies

So I have lozenges and spray prescribed for my mouth, but what does everyone else use on their lips?

I have over the years purchased every single balm, cream, lotion, potion known to man, and never found one yet that works.

Every now and then I find one that seems to work well for the first few days, and then just as I am about to have nice, smooth lips for the first time ever, it seems I get used to the potion and it stops working, and I go back to the dry sore lips again 😒

Written by
donnabrain profile image
donnabrain
To view profiles and participate in discussions please or .
8 Replies

Whatever you use just be aware that balms that don’t contain sun screen magnify the sun’s rays and can cause a premalignant condition. This in turn can be the cause of invasive squamous cell carcinoma - the kind that leads to oral cancer. I know this because it’s happened to me.

My lips look dry and very chapped but actually it’s the condition itself.

dermnetnz.org/topics/actini...

1573 profile image
1573 in reply to

Hello, I've had the same problem due to Sjogrens and have tried everything. I use Eucerin face cream 5% urea which I get on prescription for dry skin which really helps. I am now using Eucerin Aquaphor skin balm on my lips throughout the day and last thing at night and it has helped enormously with the dryness. I bought it from Amazon as it's not easy to find in the chemists.

donnabrain profile image
donnabrain in reply to 1573

I shall give that a try

donnabrain profile image
donnabrain in reply to

Thank you, was unaware of that

harmony2 profile image
harmony2

Nivea lip balm. I have one in the pocket of every coat, one under my pillow for nighttime, one in the bathroom, i’m in my pen cup on my desk and one in my pen cup next to my favourite upholstered chair, et cetera.

I are you question focused on the lips but I thought I’d mention:

Also, at night next to the one under my pillow I have some “Biotene dry mouth oral balance saliva replacement gel”. For inside my mouth near my bed I also keep “Biotene Oral Rinse”; I just put a few drops in my mouth a few times during the night just to thinly coat the inside of my mouth. Obviously it doesn’t last all night but it soothes and helps.

Georgiab123 profile image
Georgiab123

I use Carmex lip balm it’s the only that works for me

Grandmaof3babies profile image
Grandmaof3babies

I use Burts bees lip balm. It’s the only one that seems to help

selbelle profile image
selbelle

I use vaseline and it works well for me.

You may also like...

Sore dry eyes

morning is my dry sore eyes, which I just cant seem to get under control, despite using various...

lip biopsy

had a lip biopsy 2 weeks ago , to test for Sjogren’s ,but I am regretting it so much my bottom lip...

If I dont have a dry mouth could I still have sjogrens?

syndrome, I do have Coeliac disease and also dry skin and other issues but not a dry mouth, if...

Recent diagnosis of Sjögrens.

Hello from 🇨🇦 I have been recently diagnosed with Sjögrens. I also have Afib, osteo arthritis,...

Reduced vision and ringing in ears

all, I'm new to this page. I have probably sjogren's. I have dry mouth eyes, possibly small fibre...