Adrenal/pituitary issues

[Mckesa]

I am back on prednisone after another very slow wean and then being off it for 2 months. Again I became so sick with pain and exhaustion to the point I was almost unable to function. I ended up in ED with sudden excruciating head pain and vomiting. I have blamed this on a flare of SS every time it happens but within 12 hours of being placed on 10 mg of prednisone I can think, alert, feel like muself again, and pain free. I have a family history of Addisons disease and thyroid problems. I am really thinking I need and MRI of my head to check pituitary - could we have been blaming my eye/head pressure on Sjogrens when other things should be at least ruled out? I am waiting for referral to an endocrinologist and then I think I need to find a new PCP. Has anyone else had these issues - eitjer related to SS, or prednisone, or adrenal/pituitary problems? I am not sure how insistent I should be on brain imaging and I don't like being dismissed by my doctor.

[Ncpoet]

Hi! When I found one doctor who was dismissive, I did find another. At the very least get a second opinion on what is going on with you. The endocrinologist sounds the way to go. Get your referral and see what he says. He can answer your other questions. I haven’t experienced what you are talking about, but I do have a lot of headaches, all three types. Hang in there until you get some answers. Take it one step at a time. I know it is frustrating not to have answers right away. Please keep me up to-date on what is happening with you

All the best

Judy

[jfran44]

You should insist on it since you have a family history. Sometimes we have to be our own advocate. I would immediately start looking for another doctor.

[Mrspkp]

My rheumatologist likes to put me on and off Prednisone. I have a love/hate relationship with that drug! It works but then I gain a bunch of weight. And extra weight on the joints isn’t good. I truly believe with as much pain, cramping and tremors I get in my legs, that I have progressive MS. It runs in my family but they say since my brain MRI is negative, it’s highly unlikely I have it. I wish doctors would stop looking for abnormal tests and listen to the patient!

[Hidden]

I am now only taking 3mg of Pred daily. Reduced slowly from 40mg daily pus 5grams of Methylpred for Vasculitis. I have to try to get off it completely because of Osteoporosis.