The Australian Sjögren's Syndrome Association

For those in the UK

Hello there: xx

The difficulties of having autoimmune disease either one or several

Posted by MaryF ADMIN 0 minutes agoEdit | Delete

I have had some truly great care over my life time, but some that has been equally appalling, partly down to lack of understanding about the spectrum of diseases I have, and at times this has caused lack of referral or no care at all.

I truly believe that people can make singularly and collectively make a difference.

I have signed all three petitions AND passed them on to others for further signatures and sharing via email and social networks.

I have three petitions here. Sorry there are three. The first one: A petition started by Dr Rita Pal, the original Staffordshire Whistleblower who lost her job sticking up for the public. The paper her and her medical colleagues wrote, (currently not being noticed by the DOH), is a fairer and more cost effective way forward. Currently patients and medical staff get equally badly treated should they flag up issues. Some discussion and some sorting out with dignity intact on both sides would save money, lives, jobs and patient dignity in the long term. The formal complaints system gobbles up valuable funds and has a poor outcome for both sides.

The second one, affects many of us who have autoimmune disease and is about choice. The standard NHS treatments for thyroid disorders do not work for everybody. To have a choice of cost effective treatments would be better:

and the third one: This is a very good idea, improving the lot of thyroid patients world wide

Thank you for reading this. Every signature and sharing of petitions helps us all.

Mary F

3 Replies

Hi Mary

I've already signed the first one I've discovered, and I signed the 2nd one too.

Plumcake :)


Thank you so much, this really helps, and please do consider passing them on via email and facebook they all need a leg up for circulation The third one is world wide xxxxx X


Welcome Mary, I have shared on Facebook and will do so on twitter.

My main worry at the moment is my anxiety and depression. I'm isolated and so lonely. Off my food and don't know what to do. People don't understand and don;t even know what I'm going through. xxx


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