Hi, I was wanting some advice.
My 7 year old daughter has just been to a paediatrician and he is testing her for Sjogren’s and rheumatoid arthritis. These were her symptoms:
*keratoconjunctivis sicca (she has been seeing an ophthalmologist and has been treated with steroids and lubricating drops for about 18 months)
*back pain and leg pain around her knees
*constant nausea and stomach pain
*he did an X-ray and she has quite bad constipation despite usually having diarrhea.
While we were at the dr she complained to me again of a dry throat and I told her we’d get something for it.. but I didn’t think to mention it as at that stage I didn’t know it could be a symptom of something.
She has been coughing a lot at night with a dry cough and yesterday she had a nose bleed which she never has had before.
She gets very thirsty at times and will almost be panicked if she doesn’t have water available nearby.
From a young child she used to rock back and forth on furniture and we noticed a connection between thrush and when she would do this.. we think it was her way to cope with the itchiness. She has started this again in the last few months.
She has been hospitalised for pneumonia and often gets respiratory infections.
She has a positive gene test for coeliac disease but the dr explained she doesn’t have it and may not get it.
As I have read more information. I feel like Sjogren’s would make sense and it’s like I can finally see how so many things we’ve been treating individually could actually be connected.
So.. my question is. At present the paediatrician has tested her blood for rh factor, ANA and some other antibodies that my gp said were testing for Sjogren’s . If these come back negative.. does that definitively rule out Sjogren’s?
We don’t see the paediatrician again for 4 weeks.. but my daughter is in pain every morning and night. Is there anything we can do in the meantime if it is Sjogren’s.
She’s using a heat pack on her back and knees. Taking paracetamol for the pain,
She’s on Prednisolone drops and celluvisc lubricating drops for her eyes but the steroids are being weaned down to see if she can manage without them.
Any advice is appreciated and thank you for reading my long post. 😊