Do I just take my Dr's diagnosis? If I had more faith in her I'd be happy, but I'm not so sure.
I've had dry eye since very young (maybe since birth but not sure). Diagnosed as a young child. Every singe eye specialist would tell me I'd grow out of it as a child, then as and adult in their expertise they'd tell me it was just a stage I was going through.... still here 40 something years later!!!!
Schirmer's tear test virtually zero
Aqueous layer - veritually zero (could be zero but eye specialist wouldn't make that call)
Lipid layer (oils) almost none, just able to pick up a reading after wiping over, and over and over multiple times back and forward over my bottom lid.
I have Meibomian glands, and most look in tact, with some evidence of trauma.
A lot of inflamation.
I have rosacea and ocular rosacea
I have a dry mouth feeling, but still have saliva (have had this long term).
I had dry other parts life long.... now even more so (age related).
Lots of other little things that (may or may not be related) my eye specialist though may be indicative of Sjorgen's or autoimmune and asked my dr to test.
As a non expert myself I left the test part up to my dr who has given me a result of the ANA test only, which was 160 speckled and told me I didn't have a high enough reading for her to refer me to a rhumatologist and because I don't have any symptoms.... (HUH?). Kind of dismissed me and wasn't really interested about my dry eye etc.
I've come home and seen that she did request ENA etc (only knew that was relevant after looking it up after coming home from the doctors), but she never mentioned any of the ENA results. Are ENA results definative.... will they tell for sure?
Do I trust she knows best? If not where do I go from here?
Victoria - Australia