Confused. Com: Hi guys Not quite sure... - Sickle Cell Society

Sickle Cell Society

2,009 members521 posts

Confused. Com

NattyB7 profile image
1 Reply

Hi guys

Not quite sure what to say ,I'm new to this. So I'll try not to waffle. My dad has sickle cell and 2 days ago my GP finally diagnosed me as having Thalassemia. She wants me to continue taking my iron, vitamin D, blood pressure tablets and tablets for my migraine. I'm trying my best to educate myself based on this , my symptoms seem to fall under thalassemia but I've also had a few crisis in the past and explained this to my doctor prior to the diagnosis. I just want to know what to do and how others cope , all of my life I've been treated for anemia and popped paracetamol for pain relief.

Written by
NattyB7 profile image
NattyB7
To view profiles and participate in discussions please or .
Read more about...
1 Reply
bluebug profile image
bluebug

Did your GP send you for tests to confirm you didn't have sickle cell?

There are people who inherited the recessive genes from both parents who have a thalassemia sickle cell variant.

If not you need to demand to be tested to rule this out. The reason for this is both sickle cell and thalessemia are recessive so require both parents to have the disease, and as your dad has sickle cell you need to rule this out.

(There are people with sickle cell who inherit one gene from one parent who get ill but standard medical thinking ignores these people. )

Also this is the Sickle Cell Society site so you are unlikely to find thalessemia suffers here who can give you advice.

Not what you're looking for?

You may also like...

Not understanding

I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me...

This body's not mine...lol

I have been having cognitive issues, anyone else been having problems? If I'm.getting ready to...

Collapsed - Interpret Blood Test Results?

I have Raynauds, low stamina (even at my fittest) and get easily breathless - I don't smoke btw ! -...

CBC results

I did a CBC about a week ago and the results came back stating that I'm sickle cell anemic however...

Living with sickle cell trait

Hello, my name is Lory I am a 23 year old woman. In high school I played 3 sports. As I begin to...