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Sickle Cell Society
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This body's not mine...lol

I have been having cognitive issues, anyone else been having problems? If I'm.getting ready to do something, sometimes I'll stop in the middle of doing what I am to do and forget what I was about to do.. I've Lso been feeling like I'm not in my own body, like I'm in a dream...

Weird!

Anybody know what this is?

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I don't know what this is but this also happens to me a lot. I not only forget what I am about to but I also have pain so bad that it feels like I am not in my body. If you don't mind me asking do you have sickle cell trait or sickle cell? And so do you ever have pain from it? I hope you feel better

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Sickle cell anemia

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It's so painful!!

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I am so glad that I am not the only one who feels this I just found out that a portion my lung base is collapsed, chest hurts so bad, I can feel sharp pain under my ribs it's so crazy! Some days my husband has to help me in the shower if my psw isnt scheduled for that day.

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Sorry you suffering and I hope your lungs get better. Also I have had fluid on my lungs I've had ammonia twice. I have really bad chest pain as well my chest pain makes it hard for me to move and walk. I have very sharp intense chest pain and I have sickle cell trait. I am told the pain isn't from sickle cell trait but it is everyday and constant.

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I get pneumonia every year lol it's crazy!

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They now suspect I have lupus or Mctd on top of the sickle cell

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Oh Wow they said I had Lupus too but my test was negative. I have similar symptoms of someone who has sickle cell anemia.

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I am glad I am not the only one that has these symptoms!!

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Hi,

What I do is take high doses of fish oil. 10 grams per day. This helps the blood flow. I also make magnesium oil. You can use Epson salt or flakes. You take 1/2 cup of hot water and a half of cup of magnesium. Put it in a spray bottle and I add a few drop of lavender. I spray my body in the morning and again at night. I just let it dry. If I start to have any pain in the night I get up and spray again. It helps the RNA and the DNA. The other thing that helps me is doing intermittent fasting. This helps the cells. I do drink water but fast every day 18 to 24 hours. I also take D3 daily. And various other supplements. I was told I would not live this long. Since doing this my brain works great. I also take high doses of Turmeric pills, lyposolmol vitamin c in high doses. I am rarely getting pain crisises since doing this. No more fluid build up in my lungs. I drink water with lemon and use apple cider vinegar daily. Sugar is a killer for the blood building. I switched to Stevia with erthitol. I also use MSM and Vitamin C drops for my eyes. Because I worry about going blind because so many of my family members have had blindness due to the sickle cells .

Try it and see if this helps you.

Dr.V.

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Thanks for the info! Doctors just told me they suspect I have lupus or MCTD

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You would have to go on the Ketogenic diet and it will help is you have Lupus. Do you have a lot of bruises?

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Rashes on my face but my mom has MCTD which is such a complicated disease

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Hello that is good information, do you see improvements with a fish oil? And does it help with your sickle-cell symptoms at all?

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