CBC results

[Miguelf]

I did a CBC about a week ago and the results came back stating that I'm sickle cell anemic however all my life I've been diagnosed with SCT I had one crisis when I was 7 I'm 24 now. Is it possible that a trait can progress into anemia? Also I do not exhibit any symptoms of sickle cell anemia

[Breeze1]

Hello Miguelf... Its my understanding that in order for you to have sickle cell anemia, you have to inherit 2 genes from both parents that have SCT... Did you visit your pcp to confirm the diagnosis?

[Miguelf in reply to Breeze1]

Hello the results were confirmed by the lab I didn't visit my PCP to confirm the results

[Finalybeingheard]

Yes it can my Hemoglobin S has manifested into the disease. It's tough and now Hydrea is no longer being manufactured, only God knows what's gonna happen next year.

[Cya1117]

There is no way sickle cell trait can turn into sickle cell disease. You either have one of the other. The CBC lab won’t show your % or amount of hemoglobin s to know. I would recommend you speak with your hematologist and being your lab work to discuss and it be explain to you in a way you understand.

[tamarat1002002 in reply to Cya1117]

There is a separate blood test the doctor can order that shows the percentage.

[Cya1117 in reply to tamarat1002002]

For the trait? As far as I know with SCD yes , not sure about the trait.

[tamarat1002002 in reply to Cya1117]

I'm not sure about the trait, but the concern is whether the trait can turn into sickle cell. That gene test can tell what the percentage of sickle cells you have and that can tell you whether you actually have the disease instead of the trait.

[Finalybeingheard]

I am living proof that it definitely can. Mine has progressed into the disease. I am fighting every day to stay healthy.

[Finalybeingheard]

I started having symptoms at 30 after having so many symptoms at 3-7 yrs of age. Then at age of 29 symptoms started coming back and doctors I was crazy. Then at 33 and now at 41, I have been diagnosed with an aggressive gene of the Henoglobin S has manifested into the disease now. I'm holding by a thin thread, dangling in the air and God is keeping me spiritually whole.

[jo19]

Finalybeingheard

[jo19]

Finalybeingheard you are wrong. It's impossible for sct to change to SCA. It is possible though like it has happened countless times that your first blood test was wrong and you got the correct result after another test. To the original post, not everyone with SCA have the same issues. You might have SCA and also kept your foetal haemoglobin. In other words, when a child is born after 6 months, the haemoglobin gotten from the mother is replaced the child's own but sometimes the child keeps that for the rest of their lives. Those who have SCA and keep this part of their mother's blood are lucky enough like my sister to have this haemoglobin, your symptoms are usually less severe than those of us who don't keep this blood. That is why you see SCA symptoms in babies don't start until 3 to 6 months. You are very lucky not to have many symptoms.

[Finalybeingheard in reply to jo19]

Actually, it is not. There are very few case studies of this but there proven case studies. I know a woman who had Sickle Cell anemia and none of her parents had sickle cell. She has recently died from heart failure after having gervspleen removed and countless blood transfusions. There are multiple versions of sickle cell like Hemoglobin S antilles and Hemoglobin S oman. And others. But everyone on this site is going through the same illness. We may experience different symptoms but we are all fighting a common severe illness. Encouragement, empowerment and endurement is what we need and to overcome and conquer the odds that have stacked against us from Birth, young and at times a late stage in life.

[Luvnuallways]

It is possible that you can be anemic and have SCT. Your symptoms can be mild or manifest more as you age. Ie 30s to 40s

[Luvnuallways]

More than likely you have an S hemoglobins variant that acts so bad on its own it’s as if you have SS. However your genes may show AS or SC etc. the SCA or sickle cell anemia means you have an anemia associated with the S gene. So it’s not that your genes changed but rather the doctors awareness of the severity of your case has changed. In either case you have to take care of yourself as if you have SS because you can become very ill.

[Finalybeingheard in reply to Luvnuallways]

Thank you for that Luvnuallways!! I have been suffering more since I had Acute Renal Failure in Feb. I've been in and out of hospital I've lost count. I'm on a nebulizer, IV hydration, hydrea and gravol injections along with pain meds. So ya I'd say I'm getting worse. God is my reason for carrying on.

[Luvnuallways in reply to Finalybeingheard]

Is there anyway we can connect? Your case needs to be heard. We do advocacy work for a group called Wats Da Count You can message me privately and we can exchange email. I would also like to be a support for you

[tamarat1002002]

There is a separate blood test the doctor can order that shows the percentage.