Hidden

Hello Uniy, I also have the trait and ALL the symptoms you described everyday. I tell my doctors but they never say that my headaches, pain etc. is related to sickle cell trait because they know little to nothing about it. Instead, I've been diagnosed with fibromyalgia, chronic pain, degenerative arthritis etc.

Hang in there until science catches up!

PrettyNoona in reply to Hidden

Hope science catches up soon...lol. Thank you.

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Elisa0811 in reply to Hidden

Science has caught up their stem cell transfusion or bone marrow transfusion’s to help those with sickle cell anemia it may not help everybody but as gently as some of the symptoms can be it would be worth looking into the possibility of being a candidate

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Laddylowe

Symptoms are common, but you should go get your blood test to see if you have something a little further than just a sickle cell trait because you can have sickle cell and I have other components that give you further symptoms without having the disease

PrettyNoona in reply to Laddylowe

I'm always in hospitals seeing doctors But there's no progress, they always tell me there must be something else, they ask me a lot of questions but at the end of the day they can't diagnose anything.

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Laddylowe in reply to PrettyNoona

Have you seen a hematologist?

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PrettyNoona in reply to Laddylowe

Yeah, for the past 2 month but he is hardly in the hospital and sometimes I miss him when he is there, so we haven't make any progress yet.

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Elisa0811

Yes, it is normal. Even if it is rare, someone has to be in that small group and I assume you wouldn’t lie about your symptoms, so don’t ever let a doctor tell youIt’s impossible it’s rare only a very few people have symptoms if you’re presenting with symptoms then apparently you’re one of those view and it’s normal for you to have the symptoms you shouldn’t be compared to other people that are completely on related to you anyway if you’re having the symptoms demand that you be treated for the element and if one doctor doesn’t validate your experience just keep going until you find the one that believed you and not what the bloodwork says

PrettyNoona in reply to Elisa0811

Thanks Elisa. I'll keep going.

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Elisa0811

Forgive all the typos... I tried speech to text

PrettyNoona in reply to Elisa0811

Worry out, I understood just fine.

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Luvnuallways

There is a growing body of research that symptoms with AS are not so rare as they try to say. It’s just that they always dismiss our symptoms bc it’s hard to measure in a lab. But the CDC website acknowledges that trait

Can have pain crisis from something so simple and common and dehydration. You need fluids and pain medicine when you get sick. You need to educate them with love and logic. Look up the literature and show them. First find a primary physician that believes you and will at least give

You pain meds then hydrate as much as you can at home. Have them refer you to as many hemotologists as it takes to find one that knows the truth.

I am praying for you

PrettyNoona in reply to Luvnuallways

Thanks Luvnuallways, I appreciate this.

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