All the doctors I have seen have told me its all in my head. I am 33 year old white female. I inherited the trait from my mother. She occasionally has pain problems but NOTHING like I experience. I had a little joint pain growing up but nothing too crazy. Shortly after I turned 20, I got pregnant with my daughter and that's when everything really began. 4 months pregnant I ended up in the hospital with severe dehydration and a kidney infection. No problem right? Typical pregnancy related crises.
I told my doctor that I wanted to be treated as high risk because my sickle trait and he told me I had nothing to worry about because I wont experience anything unusual. Okay but please indulge me by giving me at least a couple extra doctors appointments! So birth went great.
Two years go by and I start getting this pain that started from right below my breast to my belly button. Its felt like someone kept stabbing me in my stomach! I am doubled over and I felt a little relief when I vomited but still went to the ER. Nothing wrong and all my organs look fine. Its all in my head. This keep up almost 2-3 times a week for a month. I cant do it anymore! I went to see a gastroenterologist who did CTs, MRIs, endoscopic procedures, blood work, and everything else. NOTHING WRONG! All in my head! Only half diagnosis of it might be acid reflux. REALLY?!?! Okay. Now I have watched my acidic intake and have really watched not eating anything that triggers the pain. Only rarely do I get the pain. Only every year or so now.
Okay now on to why I am really concerned for my health and my SST. Since I gave birth 12 years ago, onset of symptoms I never experienced before. I know! Pregnancy ruined my body and the way it functions. But worth it anyways! So one of the symptoms is intense cramps right before my period. Only in the last couple years has it gotten worse month after month. I get MAJOR blood clots coming out (and of course the normal uterine wall shedding) but I will spend one day before my period in INTENSE pain! Feeling like someone is trying to rip out my insides! I could only imagine something like trying to stick a quarter through a straw. And the clots can range from the size of an M&M to taking up half the size of the palm of my hand! And they come more frequent and bigger with how much pain I experience.
I really feel that SST has attributed to not only every crises I have had but the fact I feel anemic often. I have trouble with the lower and higher altitude situations. I also get easily dehydrated. My back hurts ALL THE TIME. I get winded easily. This blood clotting problem has also probably been the reason my husband and I aren't getting pregnant. 7 years no baby. (He has 2 of his own and I have one of my own). My previous husband 8 years no baby ( he had none).
I can take maybe doctors saying its not part of my SST but for them to tell us that our PAIN is all in our heads is ridiculous. I am not a junkie. I am not looking for pain meds. In fact, I don't like taking meds at all! All we want is a solution to stop living in pain!
Has anyone experienced any of the same symptoms?
Has anyone found anything that could help relieve pain, naturally of course?
Has anyone ever experienced infertility that has SST?