Symptoms : So I found out I had the... - Sickle Cell Society

Sickle Cell Society

2,013 members521 posts

Symptoms

Kaychi profile image
4 Replies

So I found out I had the trait 2 years ago . I have been having stomach ache n joint n back pain also headache . Today I woke up with a lot of fatigue. Going back 4-5 years I have been seen Drs with stomach pains , I was seeing a gynaecologist after a laparoscopy she discharged me and referred me to a gastroenterologist who's has now done a colonoscopy and now awaiting an endoscopy. I have had ultrasound etc nothing has been found . So how do I get treatment if they can't diagnose me with anything . Am so miserable and fed up . I think m getting depressed now I can't do it any more help please .

Written by
Kaychi profile image
Kaychi
To view profiles and participate in discussions please or .
Read more about...
4 Replies
bluebug profile image
bluebug

Have you got a full copy of your blood work? As well as a full blood count you need ferritin, vitamin D and vitamin b12 tests. Make sure you get a copy of the results from the doctor. Unfortunately some levels of ferritin (iron) and b12 doctors say are normal are too low so you need to in the top half of the range.

Luvnuallways profile image
Luvnuallways

You have to find a hematologist and keep searching till you fine one who treats people with treat. Hydration is very important. IV fluids work wonders. And oxygen. Doctors are divided in their opinions on it but there is. Lot of research now showing that trait does has symptoms and can have crisis

Luvnuallways profile image
Luvnuallways

also take folic acid daily. Noni juice from only natural inc has been helpful for me as well as green herb/juice. Start noticing which foods increase or decrease your symptoms. Avoid altitude, extreme heat or extreme cold or extreme exercis

Cynt-ann53 profile image
Cynt-ann53

Hi @Kaychi, Make sure your doctors know that you have SCT. Don't let them experiment. Take your health in your own hands and, if you have to, give them the information about how SCT can cause symptoms of the disease. Make sure you are well hydrated and you eat lots of green leafy veggies. Someone on this site says that beetroot is good to eat to help stay symptom free. Also, I have been trying to find out more information on redCel (Mirabel) Tea. That is also supposed to help, however, I need to know what the tea is made of....the ingredients.That would be good to know because people is always to make money off other people's problems.

Not what you're looking for?

You may also like...

Crisis but only sickle cell trait?

I am a 44 year old lady and have been told iam sickle cell trait for many years now. what i need to...
karengr1 profile image

Living with sickle cell trait

Hello, my name is Lory I am a 23 year old woman. In high school I played 3 sports. As I begin to...
LoryD profile image

Sickle cell trait problems

Hi I have sickle cell trait hb d heterozygote so my card says I inherited it from my dad who was...
amysassy profile image

Need to understand

I'am 52 years old, and have sickle cell trait. I get so sick of people telling that people with...
friendly2 profile image

Symptoms and the trait

Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which...
SCSZoe profile image
Partner

Moderation team

SCSZoe profile image
SCSZoePartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.