New to this group site.

[UniquePassion24]

Hi everyone I'm a SCD patient. I'm 24 y/o and I have known I have had sickle cell since could remember. I watch my mother deal with me and this illness when I was young. But , now that I am grown and out on my own the care and hospital treat ppl like us different. I have endure the pains in er's for the max of 5 hrs after triage and blood work. so after that I get really with the medial centers worker because I know my blood work tells them everything. I'm just so tired of being treated like a criminal at my worst times. I only go when I can't endure my pain and I need better help from "professionals".

[Angelaashford]

In 54 years old and I have sickle cell as well o passes the trait to my youngest son which he has more of the full disease side than the opposite now I read your post and I feel bad that you have to deal with such incompetent health professionals. When I have to go to the hospital for anything including my bouts I choose the same hospital which has all of my info. Going there will ensure me that ill have not only excellent care but all of my doctors that are outside of the hospital will be alerted and if I'm admitted will visit me daily ie: my pain specialist, infections disease doctor, as well as my primary will come. In hopes that this could help you in any way in the meantime stay strong.

[Hidden]

Welcome to the group, hope that you can get some helpful support and useful info here. Sorry to hear that the care you are receiving is making you feel so bad, and that you are spending a long time in the emergency room. Nobody should be made to feel like that and you deserve the best care with respect like everyone else. Can you make any changes to where you get care so that you are treated by people who really understand SCD?

[vanessamaxwell]

I know exactly what you're talking about, im in pain as we speak.. People like us always get treated like criminal.

[CBoswell]

that is so messed up..I feel you need someone to be there with you when this happens. they should not treat you like that at all..

[UniquePassion24]

I do i use the same 3 hospitals and my hematologist isn't always available he also has cancer patients. but I aways follow up with my hematologist.the hospital closest to my home is slow and take forever to triage and see nurse (but they treat me horrible like I'm a criminal I use them if Im in way to much pain to even drive from my house). the second option is like 15 miles away they are quick triage and nurse visit when they also inform my hematologist (but they don't know much about SCD). then my last option is 46 miles away and is the best sickle cell department is the state(lots of patience but quicker about getting your fluids started the doctor on call visits.