The Children who come and go

[Anzy]

I don't know how to be a human being: I know how to be a human crying, a human lying, a

human trying, a human sighing, even a human dying. But a human being well I can't be.

– A.A-A

Diary entry: Brighton Summer – July 21st 1997 – 7years, seven months and 6days.

Today, our teacher took us to Brighton. This was my first time in Brighton, and probably my

last. The day started out well I was enjoying myself, eating lots of candyfloss and chatting

with my friends, the whole class was completely relaxed. A few people were staring at me,

and some even came up to me. They asked me why my eyes where yellow, I told them that I

had sickle cell anaemia and that it was one of the symptoms, one of the boys asked if I could

see in yellow, I told them I saw fine. Then, one of the boys whispered that it looked like someone had pissed in my eyes, they all started laughing and walked away. I guess I should

be used to that by now, but still, I cried for a while in the toilets, no big deal really. I went on

like everything was fine. But I had to spoil it all by getting sick, I hate myself! Why did I

have to be born a sickler I hate that word sickler, they all call me that ‘sickler’ the doctors, my parents, everyone! All I hear is sick sick sick.

[Dellen-5]

Be strong there are people with more complex health yet they strive to leave on other with complex disability yet they leave freely. those jokes at school should make you strong and courageous in life.

[Anzy in reply to Dellen-5]

Indeed they did make me stronger.

[Hazeleyes05]

Hello Anzy,

How do I begin to comfort you? I can tell from what you've written that you are very intelligent. Be thankful at all times. I use to feel & sound just like you when I was younger & kept to myself alot because I couldn't do what my mates could do but I didn't let that stop me from being a fun loving person. Please you are unique, your eyes are unique. I don't have the right words to make you feel better but always remind yourself that you are much more fortunate than some other people. Don't let negative words bring you down, say positive words to yourself each day. And remember we are all warriors.

Stay positive stay strong❤

[Anzy in reply to Hazeleyes05]

Thank you so much for your response, it really touched me. I have read it several times. I always try to stay positive and I am definitely in a better space mentally thank goodness.

We are indeed all warriors.

Thank you my fellow Sickle-cell Warrior.

[SCWBTDOM]

I pheel ur pain😩😩

[SCWBTDOM]

I experienced the same situation I often ask GOD why me???Why was I born with this disease?? Ur BLESSED!!! and I hope u kno that. Continue to take care of urself drink alot of fluids and take ur meds. And remember ur not alone.

[Anzy in reply to SCWBTDOM]

Thank you!