The Children who come and go - Living with Sickl...

Living with Sickle Cell Disease
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The Children who come and go

I don't know how to be a human being: I know how to be a human crying, a human lying, a

human trying, a human sighing, even a human dying. But a human being well I can't be.

– A.A-A

Diary entry: Brighton Summer – July 21st 1997 – 7years, seven months and 6days.

Today, our teacher took us to Brighton. This was my first time in Brighton, and probably my

last. The day started out well I was enjoying myself, eating lots of candyfloss and chatting

with my friends, the whole class was completely relaxed. A few people were staring at me,

and some even came up to me. They asked me why my eyes where yellow, I told them that I

had sickle cell anaemia and that it was one of the symptoms, one of the boys asked if I could

see in yellow, I told them I saw fine. Then, one of the boys whispered that it looked like someone had pissed in my eyes, they all started laughing and walked away. I guess I should

be used to that by now, but still, I cried for a while in the toilets, no big deal really. I went on

like everything was fine. But I had to spoil it all by getting sick, I hate myself! Why did I

have to be born a sickler I hate that word sickler, they all call me that ‘sickler’ the doctors, my parents, everyone! All I hear is sick sick sick.

1 Reply

Be strong there are people with more complex health yet they strive to leave on other with complex disability yet they leave freely. those jokes at school should make you strong and courageous in life.


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