living with cancer

[WTLS]

In July, I started bleeding. I immediately called my gynecologist. They did an ultrasound and scheduled a follow up. At the follow up, she did as biopsy; the following day she called to let me know it was cancer and referred me to an oncologist. The oncologist did a complete hysterectomy and removed 2 lymph nodes. Turns out it was carcinosarcoma Stage II almost 40+ percent into the endometrium between the uterus and cervix. I am having Chemo now.

[Bootz2023]

Welcome to the group. I was diagnosed almost 3 years ago. I had a complete hysterectomy with several lymph nodes removed. I was stage 2 grade 3 (LVSI and myometrial invasion over 50 percent). I had 5 weeks of external radiation with a day of cisplatin each of those 5 weeks. Followed up with 3 bracetherapy .

I hope you will join the support group. It’s a place to learn and spend time with others who understand what you are going through.

Please reach out if I can help in anyway as you travel through this journey which is so overwhelming in the early stages but gets easier with support and knowledge.

[WTLS in reply to Bootz2023]

Thank you for sharing your story. I appreciate the words of encouragement. I have signed up for the support group. Have a blessed day.

[FierceFriend in reply to Bootz2023]

To WTLS: Bootz2023 is right about the overwhelming aspect of this journey. My 2022 story is similar - bleeding, hysteroscopy, diagnosis, hysterectomy + lymph node removal, chemo, pelvic radiation, and brachytherapy. During chemo for my aggressive type of cancer I had metastasis. Honestly, I was living one moment at a time that first year. After treatment ended I had some bumps in the road including a pelvic insufficiency fracture (healed) and GI issues (mostly under control.) The emotional toll is huge and I still battle fear of recurrence, which I have learned to keep to myself because it upsets anyone I might say it to. The experience has changed my priorities; I now focus on family & true blue friends while saying no to activities & people that don’t bring me joy or who tell me how they think I should be living my life. The worries are not as all encompassing as they used to be, but they are never gone. We all do our best.

Wishing you both well!

[Bootz2023 in reply to FierceFriend]

I so agree - the fear of recurrence always has a small part of my mind. A little less now but always on the surface. I think as I have learned more and understand all the new treatment options I feel a little better. I believe treatments have really changed.

If you ever want to worry or talk about recurrence fears I’m hear. Everyone wants you to stay positive but only one with cancer can really relate to the fear.💗

[FierceFriend in reply to Bootz2023]

Your full understanding is so appreciated. Your last sentence says it all. Many thanks!! 😊