First Ca125 Blood test tomorrow, - SHARE Ovarian Can...

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First Ca125 Blood test tomorrow,

LaurieRose profile image
14 Replies

Hi, I'm a newbie. I haven't been diagnosed yet with Ovarian cancer but I saw my GP today and he is sending me for a test tomorrow morning. This came as a bit of a surprise to me as I went in about something else.

My question to the community is, if no one else in my family, as far as I know, has had cancer and I've only had pre cancerous cells in the cervix after childbirth and since had the all clear; what is the likelihood of me having ovarian cancer?

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LaurieRose
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14 Replies
Neona57 profile image
Neona57

The chances of having ovarian cancer are very small. My GP gave me a CA125 test 3 years ago when I went in with symptoms of stiffness and was found out to be badly anaemic. The CA125 test came back as normal. I was eventually diagnosed with polymyalgia. Unfortunately for me I did have ovarian cancer-will never know if I had it back then although I think my GP thinks that I had the cancer and it was driving the other symptoms. Your GP is just taking precautions and eliminating things-ovarian cancer is very rare.

LaurieRose profile image
LaurieRose in reply toNeona57

Thank you and sorry to hear you tested positive x

missa13 profile image
missa13

GwenHP what do you think? LaurieRose my instinct is to say there's no one who can tell you your likelihood but your doctor. There are risk factors for ovarian cancer you can learn more about here: sharecancersupport.org/ovar...

The Ovarian Cancer Research Fund Alliancer (OCRFA) also has a personal risk assessment tool you can use, with recommendations for each risk level: ocrfa.org/patients/about-ov...

What test are you having today? Let us know how it goes. xoxo

GwenHP profile image
GwenHP in reply tomissa13

I agree with missa13. But at this point it doesn't really matter what your odds are. Statistics don't apply to individuals. You want to know one way or the other whether you have ovarian cancer or some other diagnosis. You didn't mention what if any symptoms you were having.

LaurieRose profile image
LaurieRose in reply toGwenHP

Yes, well the worst symptoms are perspiring excessively especially early evening onward feels like detoxing, massive weight gain, bloating, breathlessness, anxiety, extreme fatigue, pains in the pelvis and upper thighs...like menstrual cramps, but my periods have been missing, brown urine and burning sometimes when I go for a wee. I drink lots of water and now I'm on the pioppi diet which is the ketogenic diet high fat, low or no carbs also barely any sugar.

LaurieRose profile image
LaurieRose in reply tomissa13

thanks haven't had results yet but my bloat has gone down some since giving up carbs and sugars. I will look at your links, much appreciated. I don't think I've got ovarian cancer but I guess there must have been some marker why GP checking. x

LaurieRose profile image
LaurieRose in reply tomissa13

I've read the chart in the link and it really doesn't look as though I'm in the risk group. Really glad to have read it because it mentions about familial history which I haven't got and it was a relief to have that info. I'm not going to worry now and if I have got it I won't be too distressed as I read somewhere in my searches there is more hope of getting rid of it or being in remission. Also, I don't think I could feel any worse than I do physically so it's not going to make a difference to that, unless positively because of treatment. I may be naive about this and I don't under rate what cancer patients are going through and heartfelt warm wishes to anyone suffering. xxx

rppizio profile image
rppizio

Glad to hear that your doctor is ruling this out for you, too many of us in the past have requested such testing and were dismissed as our issues had to be our diet or age etc. Hope everything turns out good for you.

LaurieRose profile image
LaurieRose

Thank you 😊

LaurieRose profile image
LaurieRose

Ive been given the all clear.

joann86 profile image
joann86 in reply toLaurieRose

Wonderful news LaurieRose :)

GwenHP profile image
GwenHP in reply toLaurieRose

Awesome news!!!!!

REMC profile image
REMC in reply toLaurieRose

Fantastic! I’m so happy for you!

LaurieRose profile image
LaurieRose

A year later and Ive had post menopausal bleeding and was sent on the 2 week urgent referal for pelvic scan which ended up including the TVUS. Results so far from radiologist and dr were small cyst on one of ovaries, other ovary not seen, fluid, endometrium just under 5mm. Dr said not to worry cancer not ruled out and wait and see what gynae says on Monday. I keep throwing up, tried cooking chicken and rice for kids tea as im not eating and the smell made me vomit. ugh, was just reading through peoples posts and found this old one of mine, Anyway hope you guys are all well or at least on the way to getting there.

best healthy wishes

xx

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