Help!

[Rachmaninoff]

Hi everyone. I am new here. I am quite scared and have no idea what to expect. I was diagnosed with an unknown cancer at the beginning of September but source was probably the ovaries. It started in April, thought it was ibs symptoms, gradually getting worse. Going for a pre assessment today and tomorrow start my first of three chemotherapy sessions . I had a partial hysterectomy in 1985 for my constant back pain. It helped and I felt good for a few months but the pain returned and spent the last thirty five years with chonic back pain. Now to add to the flavour I have another journey to go on. Please help. There is lots of information out here but I don't think I can bear to find negative stories

[Bluegreensea]

Hello Rachmaninoff

I just wanted to reach out and give you a virtual hug. It feels like the bottom has fallen out of your world when you are delivered a diagnosis like this.

It's important to give yourself time to process all the feelings of fear, shock, and frustration.

Naturally, we fear the worst, and turning to the web only heightens our anxiety.

Breathe.

Be kind to yourself; share with others - like you are doing now.

You will own this. Just give it a little more time.

Take care

BGS xxx💕

[Melody6]

Hi there, I just wanted to wish you the very best of luck with your treatment. Take care 💕. Mel

[delia2]

Hi. Welcome here. How did they diagnose you? PET scan? Are you having carbo and taxol? As time goes by you will get into a routine but you should try to get a bit more information over time so you know what you’re dealing with. Hugs.

[Rachmaninoff]

Hi delia2 thank you for hugs. First scan was ultrasound with not much showing up. Two weeks later it was a CT scan that showed a mass but had no confirmation on whether it was the ovaries being the source. So they dealing with the peritonium first (that's my basic interpretation of it) Yes had carbo and taxol and next session is in three weeks time xx

[Wicomico]

Hi. I avoided "support group" sites for the longest time, then joined this group. I like it because it is more a problem-solving group of people. Not building people up for miracles, nor dire predictions. It's great for just getting more information about what we, as individuals are going through. Lots of questions and responses re: "did anyone experience this...? My feet are ???and I don't know why. " I'm not phrasing this very well, sorry. It's just a great site for matter of fact support.

One of the things that I learned early on in my journey was to just try to be careful about which websites I went to, because lots of the "medical" sites are really not monitored for authenticity. After the fear I got from sites, I pretty much narrowed things down to mayoclinic.com, and NIH (National Institutes of Health). Just be careful how much you believe. My first research had me living no longer than 14 months... I am now at 13 months and doing very well,and just booked a trip to go scuba diving in November. :).

The other thing that helped me was realizing that this is MY cancer life, and none of us deal with it in exactly the same way. Well-meaning people will tell you "Oh, you have to stay positive, or You will beat this, I just know it", etc. I found that each day on this roller coaster ride, I could/could not deal with 'advice' differently. I just told myself that I will let myself be in whichever mood I am in... Some days I wouldn't let myself think about it, other days I was in the fighter mode, and every now and then I just let myself feel a ton of self-pity.

Again, I'm not describing things very well today. But please be assured, 1) this is a great site, you can ask questions, vent, etc.. 2) ...consider the sources you read, and have faith in your ability to deal with this, taking it one step at a time. Best to you!!!

[Greytmom in reply to Wicomico]

Well put. Exactly the way I felt.

[Newbie_2020]

I feel what you are going through as I have been in this situation. Keep positive and take it one day at a time.

It was the biopsy that confirmed it. It took a while for results to come through; so, after an MDT meeting, and in the absence of surgeries due to Covid, they started me on Carbo/Taxol every 3 weeks.

Ovarian/Fallopian/Primary Peritoneal are all treated in the same way. The doctors believe this type of cancer actually originates in the fallopian tubes rather than the ovaries.

Looks like you are on the right track/treatment. With all the best wishes!