Lynpraza question

[Danceaway]

Is anyone taking Lynpraza? I would like to hear how you are doing on the drug and if you have side effects.

[CapeCodBeachBum]

Hi, I started Lynparza in early January this year after finishing chemo in November. Doing very well, NED, low CA-125. I had queasiness for the first few weeks, easily controlled with compazine. Only side effect now is some mild fatigue. Biggest issue right now is being immune-suppressed during the pandemic which means staying isolated as much as possible.

[Danceaway in reply to CapeCodBeachBum]

Hi thank you for replying to my message. I am glad to hear you are doing well on Lynpraza. I am on my third day of the medicine and I'm feeling okay no symptoms. I I am happy about that. I understand about being isolated during this time and can relate however I go out for walks early in the morning and wear a mask and it really makes me feel good when I come home. I hope we can talk again.

[CapeCodBeachBum in reply to Danceaway]

I hope you continue to tolerate the medication well. Best of luck.

[Apwulady]

I started Lynparza in April 2020. The side effects I'm experiencing are fatigue , loss of appetite, and headaches. My CA 125 is low so that's great.

[Danceaway in reply to Apwulady]

Hello thank you for replying to my question. I am sorry you are having those side effects. I am 3 days into Lynpraza and feeling okay I don't side effects will work themselves in as I go along. Wishing you good luck with your treatment and I hope we can talk again thank you

[Apwulady in reply to Danceaway]

Thank You. Good luck with your treatment as well

[Keog]

I’ve been on Lynparza since May 2019 and have been tolerating it. The side effects that I have are weight gain, some tiredness and low white and red blood counts.

[9667]

Been on Lynparza for 1 and 1/2 years. Fatigue is a genuine side effect, but the drug works!!

NED and low CA 125 count. Would LOVE to hear from those folks that have been on it for over 3+ years. They have the story to tell.

[9667 in reply to 9667]

Been on Lynparza for 1.5 years and doing great. I do get fatigued at the end of the day!

Have we gotten any replies from the "3 year on Lynparza crowd?" I, too, would love to hear from them.

[Lolotango]

Hi Danceaway!

Welcome. I just started Lynparza for 3rd occurrence since May 2017. Stage 3c that has spread. I do not have Braca 1 or 2 Gene. Have been on for 9 weeks and lowered dose after 71/2 weeks because of side effects. Main ones are nausea, fatigue, weakness, neurothapy in feet worse and hair lost. Went from 600 mg to 450 a day. CA 125 down by 49 points by 8th week but it had risen 51 points after the first 2 weeks on it. Dr said give it 2-3 months to see what it does. Will see Dr again on July 21 and then scans. Everyday is a new adventure but these side effects are worse than all the chemo I had. Most everyone say they start to subside after 3-4 months. So hopefully that is true. All in all I would rather have the side effects than the alternative. Good luck with your therapy and let us know how u are doing.

[sohokids]

I started Lynparza in October 2017 for my 3rd occurrence, been on 600mg from day one. ( I did try Rubraca first in August 2017 and it made me very ill) With Lynparza I have a little nausea which i take medication for. No other side effects at all. My CA125 has stayed stable in the 13 range since I started. Good luck with your treatment!

[sticky3006 in reply to sohokids]

Hello, are you BRCA +ve? Thanks

[Danceaway in reply to sticky3006]

Hello thanks for responding to my message as well. I am bBRCA. What does ve mean they did not say anything to me about that? Good luck with your treatment

[sticky3006 in reply to Danceaway]

Hi, sorry I meant BRCA positive, thanks