Has anyone had this? My creatine soared and I had this procedure last week. I still have the tubes and drains. I feel overwhelmed. They are scheduling a PET scan as they see no blockage now. But they are unsure what led to this.
I hate having the drains and what this might mean for QOL
I’m sorry you are going through this. I’ve not had this, but my tube was partially blocked on a scan and the blockage was gone by the next scan. Thank goodness. Hopefully that will be the case for you. Quality of life certainly can mean different things! My brother-in-law has a very strange form of leukemia that they don’t understand yet. His clinic told him they consider quality of life being able to brush your own teeth and wash yourself. That’s a lot more narrow of a description than I would like to have! Take care and I hope you get to disconnect all that stuff soon!!! 🤞🤞
sorry you are going through this. These surges of cancer are an unwelcome reminder of its power. But they get dealt with and you then move on to the next challenge hopefully with a decent interval of calm between them. I’m also getting kidney related creatinine dysfunction issues and oncos tell me to drink more but cardiac team have me on diuretics. So what’s a girl supposed to do! I had open heart surgery earlier this year with the whole shebang of severed sternum etc and it really has been one day /week at a time but I can now walk 4-5 miles in the hills for which I am grateful. Sometimes think I’m in one of those games where you go up a level and earn rewards/magic tools to help. Other times it’s just a big game of snakes and ladders.
I have MBC and kidney disease. So you drink and pea-a lot!
Bikebabe- what a woman! To come back from all that and be able to walk 4-5 miles is a blessing… a great message for my pal Yikes123 to hear!
I'm so sorry you are experiencing this. I hope your scan goes well and that the tubes and drains can be removed. Sending you hugs and prayers.
sorry to hear this Yikes. I had swollen kidneys on my second last PET scan and high creatinine so I now have bilateral uretal stents which have improved things and my kidneys now drain. . I was fortunate not to need the nephrostomy so I don’t envy you there. My understanding was that if I needed the bag it would be temporary but the stents will be there until I’m cleared for 5 years (which is unlikely as I have metastatic.). I bled a lot initially and had a bit of a belly ache but all that has now eased after a mo th or so. I’ve now started on 3 weekly immunotherapy and weekly chemo infusions for new triple negative abdominal Mets but tolerating it well so far. Hope you pick up soon and it works a treat for you. 💐.
Please be careful before allowing physicians to go ahead with procedures. Busy doctors do not keep up-to-date on the latest research. It is up to the patient to learn as much as s/he can once given a diagnosis! Fortunately, we have "Wikipedia" which allows us access to much information on new research. It is really not that hard to read research conclusions.
That may be true when there is time, but we as patients are often brought in under emergency situations and when we go under anesthesia… in the end we just trust they have done enough to save us…
Pleaae elaborate. Are you talking about the trial or the nephrostomy!
Disturbing photos from a Brooklyn, NY Hospital
Ibrance 
reduced doseage of ibrance
Questions on treatment options
The artist 
