Has anyone been diagnosed with treatment toxicity whilst on Enhertu?If so, how was it managed?
And we're you able to go onto another drug?
Has anyone been diagnosed with treatment toxicity whilst on Enhertu?If so, how was it managed?
And we're you able to go onto another drug?
I am on a pause from Enhertu. It has caused pneumonitis. My oxygen levels have dropped (I get out of breath a lot) and I cough a lot, except when I’m on high enough steroids to tamp down the inflammation. I’m currently on steroids and am awaiting an appointment with a pulmonologist before we settle on a plan of action. I’ve been unhappy with the slowness of getting this figured out, and I’m also a patient at MD Anderson, so I’ve reached out to my MDA care team for them to take over the pneumonitis management plan.
Thank you so much for your reply.This really is a harsh treatment but effective.
After my first few doses I had to have the dose halved to be able to continue. I had about another 6 cycles before feeling rough again. That time I had a 4 month break. Surprisingly though I've had no recurrence either in my brain or body (liver and lungs).
Last month I switched to every 4 weeks instead of 3 as I didn't feel I had much quality of life.... fatigue, no energy to go out.
I've got to the average progression free survival point (13 months) without progressing. If I had a choice I'd go for treatment every 2 months or not at all until progression then switch drugs (tunicinab. - possibly misspelt)
Unfortunately we don't get what we'd prefer...
Yes, harsh is the word. But effective. It worked very well on all my mets (including brain). But the lung issue happened after infusion #4.
MDA got me in with pulmonary in a couple of weeks (the Labor Day holiday is a wrench in the works) so I’m happy. They’re doing a thorough assessment to make sure it’s pneumonitis. They’re efficient! More than I can say about my local oncologists. Anyway I’m glad to get this attended to because it doesn’t seem to be resolving.
Hi
Wondering if you live in Texas and have two teams of oncologists. Been considering getting second opinion but I’m in NY and don’t know what it means if I look for clinical trials, etc out if state. Would be commuting?
Sorry, i live in the UK so can't comment on US practices as they're so very different.
Yes I live in Texas and have one care team at UTSW in Dallas and another at MD Anderson in Houston. I haven’t been part of a clinical trial yet but at my last MDA visit I met a gentleman from upstate New York who traveled once a month to MDA (for a year; it was his last clinical trial visit).
I’m sure each trial is different, with some things possibly done at your local oncologist’s or with different check in schedules. I just know that many people make the logistics work.
Hi Elle Did u try MSK? I love them so! So attentive, I don’t feel like a number but well cared for and communication is terrific
I just received my 10th Enhertu transfusion. I had my best PET scan in 3 years after Enhertu. I had no progression and some cancer was gone. I always have a few days of fatigue and I continue to have diarrhea but all else is well on enhertu.