Sense of smell

[FloridaNYgirl]

I have been on Ibrance and Letrozole for almost 3 years and lately I have noticed that my sense of smell has diminished. Do any of you have the same issue?

[Liessie2014]

hi , I have been on Ibrance and Letrozole for almost 4 years , I totally understand what you mean , I feel my sense of smell and my sense of taste is not the same , It is frustrating , as l really love food ❤️

[FloridaNYgirl in reply to Liessie2014]

Yes, I have noticed a change in my sense of taste too!

[Tantalon7211]

I’ve only been on Ibrance a short time - but also notice a change in my tastebuds- sometimes it’s even a bitter taste in the mouth. Things just don’t taste the same - but it’s great you’ve had 4 years of success with it- hope i have the same

[Liessie2014 in reply to Tantalon7211]

I replied to your post , I don’t know where it has gone , I think my phone is playing up

[love2golfwell]

I have been on these meds for almost 4 years. I have not experienced a change in either of those two senses. Have you discussed this with your doctor? Also, did you have Covid during this time as I know that can affect both of those senses and I have read that it can last a long time. I hope you get some answers. I am in Florida, too. Sending hugs and prayers.

[FloridaNYgirl in reply to love2golfwell]

You're in Florida too? How are you enjoying this hot, steamy summer?I did have covid in 2021, prior to taking these meds. I have not discussed with my oncologist yet, since it is fairly recent change.. I will next time I speak with him. We do Tele-health each month since I retained my NY oncologist when I moved to Florida.

[love2golfwell in reply to FloridaNYgirl]

It definitely is hot and humid, a lot hotter than I remember this early in summer and when it rains, it truly feels like a jungle! Please let us know what your doctor says about the taste and smell issues. I would be interested in what he has to say about this. I have never heard of these side effects before with the Ibrance. Take care. Sending hugs and prayers.

[Liessie2014 in reply to love2golfwell]

Hi , Thankyou for your advice , I didn’t even think about Covid , I have had Covid , and I really think you are right about affecting smell and taste , I will discuss this with my oncologist next time I see her. ❤️

[love2golfwell in reply to Liessie2014]

I have several friends who had this happen to their taste and smell after Covid and it lasted a very long time. I think one of my friends still has not gotten these senses back and it has been quite awhile since she had Covid. Keep us posted what your oncologist says. Sending hugs and prayers.

[Liessie2014 in reply to love2golfwell]

I don’t know what has happened to my reply , I posted it a few minutes ago

[FloridaNYgirl in reply to Liessie2014]

I still see your replies above. Thank you. I will speak with my oncologist as well, but I think in my case there isn't a connection to covid.

[wendle3007]

No I can't say my sense of smell has changed. I do seem more susceptible to oral thrush which at its worst make my mouth taste a bit strange. As Lovetogolf, my first thought when I read your post was covid

[FloridaNYgirl in reply to wendle3007]

I'm sorry you are dealing with thrush, that can be awful. Since I had covid over 3 years ago, and change in smell is recent, I don't think they are linked. But if it's from the Ibrance I wonder why it's taken years to affect me. Anxious to hear what my Dr has to say. I see on here that I am not alone in this, which is the reason I love this site. Being able to share and not feel alone is great!

[mariootsi]

My sense of taste and smell diminished on Ibrance

[FloridaNYgirl in reply to mariootsi]

Did it take a while for that to happen? I have just noticed it recently and I've been on ibrance for almost 3 years.

[Granny333]

Hello, I experienced taste and smell and also chills with I brance

[FloridaNYgirl in reply to Granny333]

Wow! I haven't had chills yet.

[WhippetX2]

I was on this combo for nearly two years. I noticed my sense of taste was a little off and probably my sense of smell was off too since they are closely related. When I switched meds they seemed to move back to almost normal level.

[FloridaNYgirl]

Thank you. That does indicate to me that the medication is the cause of my loss. Encouraging that the sense comes back, but for now this combo of drugs is working well for me. So I will take this as a side effect.

[1horse]

Hello FloridaNYgirl, I have been on Ibrance for 6 years but have not experienced this. I wonder if it might be something else like the Covid vax? Many people who got the vax have experienced changes in smell and taste. Just a thought. Read up on it. I just finished Vax/Unvax book and it was very informative.

[FloridaNYgirl in reply to 1horse]

Thanks, interesting thought! I will read about it. I have been getting covid boosters regularly.