Disease Progressing

[sancarlos]

The bone scan has shown a progression of my disease. They want me to try Kisquali , has anyone had experience with this? I’ve been off Ibrance for 2 years now.

Any feedback is much appreciated.

[Mumberly]

I was put on kisquali with letrozole as follow up to 8 rounds of IV chemo but my ALT liver count elevated into the 500’s so I was taken off. It took 5 months for my counts to come down low enough to switch to ibrance. I’ve been on ibrance for about 20 months now.

I think if you do a search of ‘kisquali’ you’ll find a few discussion streams from others who have had a similar experience to mine, and those who have had success.

I wish you the best

Kim

[sancarlos in reply to Mumberly]

Thank you so much for your feedback. I was on Ibrance for 3 years, but was taken off for low white count. I will talk to my doctor about it.

Thanks again and best of luck with your journey.

[Discocat]

Hello

Kisqali was my first treatment when I was diagnosed 3years ago. I was only on it for a few months ....but for many people it works great.

It did work well to shrink my primary tumour significantly in that time but it also caused my liver enzymes to shoot up and I was taken off it for that reason. Symptoms to look out for concerning liver issues are extreme tiredness and a raised rash...like heat rash on arms and legs....those were my symptoms anyway.

I was switched to Ibrance...which I continue to take now.

Wishing you a good run on the next med!

Zoe

xxx

[seniorcitizen]

I was switched to kisqali after 4 plus years on Ibrance and I have been tolerating it quite well. Don't hesitate to give it a try. I was taken off Ibrance because a scan showed progression which some scans later turned out not to be a progression at all. The only real side effect I had was itching which went away with a dose reduction.... by the way I am 77.

[sancarlos in reply to seniorcitizen]

Thanks so much for your input. I’m 73 and have been dealing with cancer since I was 35!! Ibrance worked for awhile so now I have to consider the next step.

[seniorcitizen]

Oh my! I was diagnosed with stage 4 at age 73 with no prior cancer. I would certainly give kisqali a try.

[Hazelgreen]

Definitely try Kisqali, which is ribociclib generically! I have been on it for five years so was your age when I started. If you google my name on this site, you'll read about my efforts to reduce the amount I take, because I think it causes fatigue, but it has certainly worked to keep my cancer markers in the normal range. Good luck, my friend, for at least the next five years!

[sancarlos in reply to Hazelgreen]

Thanks so much for your help. I will let you know how I do. Trying to “play the cards I’m dealt “ , the best I can!! Luck to you also,

[Hazelgreen in reply to sancarlos]

Please do keep in touch!🥰, Cindy