6 week Piqray update : hello friends... - SHARE Metastatic ...

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6 week Piqray update

DianaSav profile image
7 Replies

hello friends....

Update on my first 6 weeks Piqray..... side effects minimum! Blood sugar is good at 109!!! I'm feeling pretty good and the heartburn has stopped since I got RX for Pepcid!!!

Pain is better in my bones ( besides the last two day I have aches but maybe humidity?? Or healing bone) best part My markers!!!! They dropped 40 in one month!!!!! I'm so so happy this far!! Fingers crossed it continues to work! My platelets are low ( I'm not sure if it's from the Piqray and hoping that it stabilizes) other than that all looks pretty amazing 😻

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DianaSav
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Shafight profile image
Shafight

Great news

Kahe profile image
Kahe

Great news, hoping everything keeps going in the right direction for u

Pachira profile image
Pachira

That is great news! I’m on Verzenio and Faslodex right now but Piqray will be my next line. 40 in one month is amazing. Chris

DianaSav profile image
DianaSav in reply toPachira

Yes! 40 is the most I e ever had since my original diagnosis last. August! Like you I was on Verzenio and Faslodex for my first line! My opinion that the Piqray SE are much more tolerable so far! Only thing I have to keep my eye on is my blood sugar but so far has been ok! I actually feel pretty good on this!

MyMiracle13 profile image
MyMiracle13

Hello. This is my 3rd month on Piqray. Like you it has worked well for me especially with the tumor markers. My only problem is that I have developed edema which is apparently one of the lesser known side effects. So I am now undergoing physical therapy rehab to lessen or hopefully remove the edema.

DianaSav profile image
DianaSav in reply toMyMiracle13

Awe well best of luck to you! And let's pray it keeps working for everyone who has to take it!!!!

MyMiracle13 profile image
MyMiracle13

Thanks for your well wishes

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