hello: I just stumbled on this website... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

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Matrooshka profile image
13 Replies

I just stumbled on this website on google and joined! I was googling for hand tremors and was wondering if the meds I was taking for stage IV MBC was the issue. I read on this website that I was not alone! Blessings abound! I’m happy to know that I’m in a community of others that I can relate to!

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Matrooshka profile image
Matrooshka
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13 Replies
Bluebird56 profile image
Bluebird56

Likewise, I’m 80 and still shocked after 35 years clear and now the mastectomy. Good to get information on others and not be alone.

Matrooshka profile image
Matrooshka in reply toBluebird56

This journey can be overwhelming at times. It’s great to have this website at your fingertips just when you need it!

NPmary profile image
NPmary

What meds are you on?

Matrooshka profile image
Matrooshka in reply toNPmary

I’m on Ibrance and Femara.

fancydog profile image
fancydog

Indeed this multinational group has so very many people with MBC, in all the different scenarios that can be encountered on this journey (we never asked to take), you will find someone who can respond to just about any issue that comes up. Welcome

Matrooshka profile image
Matrooshka in reply tofancydog

Thank you for this. This website has already been helpful to me!

hdhonda profile image
hdhonda

Welcome and God Bless You. Hugs, Hannah

Matrooshka profile image
Matrooshka in reply tohdhonda

thank you! I really appreciate your welcoming me! Blessings to you as well!

13plus profile image
13plus

That's how I found this group a few years ago too! Welcome, it's a great supportive group

Mumberly profile image
Mumberly

welcome to the group. It’s very inspiring!

I check messages every day and share my experience when it’s relevant but even when the question doesn’t relate to my situation, I love reading how others provide support.

All the best to you 💕

Kim

Rbeth profile image
Rbeth

I have MBC and tremors in my hands and neck(essential tremors or desonia) I receive Botox shots in my arm and the back of my neck from a special neurologist who works on large muscle shots. I have been going for years. My last neurologist told me there was nothing they could do. This neurologist told me it was no problem.

I get shots every 3 months. I received them today. Just a bit of a pinch, no pain in the back of my neck and in my forearm. It’s a miracle. Before I’d hold my head. And couldn’t write legibly. I am am an artist and this was a killer emotionally.

Any questions on this, PM me.

Feel better soon. Reenie

Matrooshka profile image
Matrooshka in reply toRbeth

Thank you for this. I will ask my onc about sending me to one as I’m an artist too! It’s quite frustrating, I drop then pick up, and cycle with this over and over. I like this treatment and will def seek it out!

Rbeth profile image
Rbeth

oops. Put my message to you under Bluebird 156 so check there. Sorry.

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