radiotherapy , 1 session to Sacrum, anyone had a 1 session palliative dose.

[debbiedo2063]

Hi everyone

I’m managing week 1 on Cape ok, bit nausea so far but nothing too drastic.

My main issue is still the progression in sacrum which I had 3 radiotherapy sessions for in Nov 2020 and they worked well until a month ago. That’s how my original diagnosis was made for sacrum pain.

I now have pain around the anal area and numbness in buttock since Ibrance stopped working , it’s a nightmare. Worse than the chemo side effects tbh.

I have just had a telephone consultation with head of Oncology Radiologist at the large City Hospital and she is going to do a 1 session larger dose asap.

Just wondering has anyone had a 1 session palliative dose and did it help.

Definitely on that rollercoaster but getting nearer that smoother ride.

Hugs to everyone

Debra xxx😍

[stardust1965]

Hi Debra

I had one palliative dose of radiotherapy to my iliac crest and hip area last summer. It took a wee while but I have been pain free (pretty much) in that area for some time now. So it was worth it with good results.

I hope you see some improvements afterwards too. 🤞

Vicki

[debbiedo2063 in reply to stardust1965]

Thanks VickiGlad you got some relief , fingers xd it helps and they just rang and will do a planning session tomorrow and treatment Friday so that’s quick.

Debra xxx😍

[Contrarielle]

It sounds like its worth a try! Good luck .

[Otis123]

Hiya Debbie I had one, this time last year. It was fine - a little bit itchy for a while but that was all.

Take care and let us know how you get on xxx

[Thatflowerlady]

Hi Debbie I have had 2 single treatments to sacrum area one last Nov and 1 4 weeks ago . I had some side effects . They also did the T12-L3 in this last single treatment . First time no issues this time nausea , vomiting, fatigue . Any questions feel free to ask away . I am starting to feel much better now.

Luann

[debbiedo2063 in reply to Thatflowerlady]

Hi LuannDid you get side effects straight away or after a while.

Thanks for answering

Debra😍xxx

[Thatflowerlady in reply to debbiedo2063]

I was vomiting 1/2 hour after treatment. The pain flare started about 6-7 hours after treatment and lasted a couple days but has gradually eased up . The fatigue lasted the longest , it was pretty debilitating for 2 weeks I was exhausted all day and yet would sleep for 12 hours a night . I wish I knew how many greys of radiation they gave me.

I hope you do much better we are all different , first time I was good .

All the best , let us know how it goes .

Luann

[Thatflowerlady]

I had wrote out a big long explanation but it disappeared ????Technology baffles me