Immu-132: I will have my first set of... - SHARE Metastatic ...

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Immu-132

Barbara-Aschner profile image
18 Replies

I will have my first set of scans on Friday to see if this trial is working for me. My 2729 markers have gone up but they tell me that I should not take that to heart because it takes a while for the drug to kick in. I will have a separate scan on my brain because I have had brain Mets too.Side effects aren’t too bad other than a feeling of dizziness. I’m hanging in! I’m very grateful that I am getting the trial drug instead of standard of care.

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Barbara-Aschner profile image
Barbara-Aschner
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18 Replies
nstonerocks profile image
nstonerocks

Fingers crossed for great results! Let us know.

Joan37 profile image
Joan37

Good luck with the scan, Barbara.

Wintervt profile image
Wintervt

Hope all goes well with your scan!

diamags profile image
diamags

All the best for great results. Thank you for being a pioneer. Your trial helps all of us.

Rhwright12 profile image
Rhwright12

Hi Barbara! Thanks for doing this! Can u tell us what your receptor status is?

Best wishes and much prayer that this helps u and potentially many more! 🙏🏻💕

Epinto profile image
Epinto

Very brave of u! What type of breast cancer is this trial for? Can u please share. Hope it goes well for u.

blms profile image
blms

What trial drug are you on? Our best thoughts and prayer for all of my new sisters.

Barbara-Aschner profile image
Barbara-Aschner in reply to blms

Immu-132

blms profile image
blms in reply to Barbara-Aschner

What type of BC?

Barbara-Aschner profile image
Barbara-Aschner in reply to blms

Triple negative But I read that it is opening up to other types of bc.

blms profile image
blms in reply to Barbara-Aschner

Always important to keep abreast of studies and trials!! Thanks

SeattleMom profile image
SeattleMom

Good luck and many prayers for you, Barbara! You are a trailblazer! Keep us posted on your progress! XO Linda

Pattie1951 profile image
Pattie1951

Good luck and prayers. I had aa scan on MAonday and am airing for results also?

Jerseygirl45 profile image
Jerseygirl45

Pray for you that it will work. Hope your scan shows improvement. Good luck!

Gmaoftriplets profile image
Gmaoftriplets

Good luck..

PJBinMI profile image
PJBinMI

Dying cancer cells can make TMs rise. It's called "flare" and is not rare with hormonal treatment. My onc and the bc specialist onc I saw for a second opinion both told me it could take 3 months or longer to know if that treatment was working. Ask the trial onc or nurse if they know how long it is likely to take to know if the trial med is working for you. Different types of meds, different amounts of time........ I hope it does well for you!

Barbara-Aschner profile image
Barbara-Aschner in reply to PJBinMI

Your response is very encouraging and informative to me and yes the clinical trial rep told me to not focus on my TM results. I am triple negative.

Thank you for your post. 😍

HopeinNJ profile image
HopeinNJ

Prayers for you Barbara!

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