Live your life but don’t get covid - SHARE Metastatic ...

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Live your life but don’t get covid

Suzianna10 profile image
35 Replies

Have been invited to go to a busy pub on Sat night for a meal with friends.

I would defo wear a mask going in and out and to toilet but feeling paranoid as not socialised since start of covid. Would you go? How much of a risk is it?

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Suzianna10
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35 Replies
Aprilfoolz1 profile image
Aprilfoolz1

It really depends on how comfortable you are and the Covid numbers in your community . Any chance you can eat outside ? I've traveled a bit and we ate in NYC indoors and I was fine (they were checking for vaccine cards at the time ). If you are vaxxed, your friends are too AND you feel pretty good about Covid numbers , have fun!

Hazelgreen profile image
Hazelgreen

You are definitely taking a chance if you go, as I doubt whether everyone there will be vaccinated, and alcohol tends to loosen cautions. I am too worried about getting covid so definitely would not go.

Warm wishes for your safety,

Cindy

Suzianna10 profile image
Suzianna10 in reply toHazelgreen

Thankyou , I suppose we’ll never get back to normal x

Discocat profile image
Discocat

Hi, yes I agree about “living life”…. I guess it’s just a matter of weighing up the pros and cons…if your going to be worrying while out then many be the answer is no…or to relocate to a quieter less crowded and more open space…outside if weather allows? There’s a similar current discussion going on here about “house guests” and much of that applies here too, so it might be worth checking it out. It’s worth also considering where you are in your treatment cycle…as WBC will be much lower at the end of your course. Personally I declined an offer for dinner last night as I’m at that time myself and feeling a bit run down too….but in my case it was more a work thing, not with close friends….and I wasn’t too bothered to miss it.

On a positive, I caught Covid…had it mildly and only missed a little time off meds…scans that were done after that time showed meds working fine and no harm done missing an extra week off.

Best wishes to you,

Love Zoe x

Suzianna10 profile image
Suzianna10 in reply toDiscocat

Thankyou Zoe. Why did you have to come off meds when you had covid?I’m on Ibrance,letrazole and denosumab injection. MBC to lymph nodes in chest cavity and a small spot on the spine.Diagnosed de novo June 2021 so will always need treatment x

Discocat profile image
Discocat in reply toSuzianna10

Hi, I think it’s fairly standard to be told not to take the meds when you catch an infection. In my case I’d finished the packet of Ibrance anyway and couldn’t get to the oncology centre to get the next one as I was in quarantine….which was 10 days at that time in Cyprus….I was also de novo June 2021. My MBC is in whole spine, skull, ribs, breast bone, shoulders and also pelvis….so treatment for ever. Currently taking Ibrance, letrazole, Zoladex implant and Zometa infusions. Best wishes to you xx

Zoe

Discocat profile image
Discocat in reply toDiscocat

We will both be coming up to our first year anniversary soon💥🎉🎊👏So here’s hoping for many many more years of treatment to come!

Hope you have a great time with your friends.

Zoe X

Suzianna10 profile image
Suzianna10 in reply toDiscocat

Thankyou Zoe. Yes the year has gone very quickly so I shall celebrate our anniversary too 🥳🍾🎈👋

Suzianna10 profile image
Suzianna10 in reply toDiscocat

Thankyou and good luck Zoe . Marvellous what they can do for us now ❤️

Beryl71 profile image
Beryl71

I understand. I was invited to a family birthday which it would have been difficult to decline. Initially I thought it was lunch, but it turned out to be evening. It was in a pub restaurant and when I arrived there was a larger family group than I had expected and several other tables. I felt very panicky, and kept my mask on whenever possible. I have had four vaccines. I survived without problems. I think we have to weigh up each situation. I have also been visiting my partner since October which involves flights. I chose a small airport and airline, wear a full medical mask, book an individual seat, and keep away from others as much as possible. I've come to the conclusion I have to have a life or I've given into MBC, but I take as many precautions as possible. Hope you're able to enjoy a family event. X

Suzianna10 profile image
Suzianna10 in reply toBeryl71

Yes, Thankyou, I think you are right. My oncologist said what’s the point in doing all of this if you don’t live your life as I wasn’t going anywhere and live alone. I’m beginning to think take as many precautions as you can but take a slight risk going out now and then. I asked my oncologist do I have to wear my mask for my son’s wedding in July where there will be 100 guests and she said no, don’t wear it-it’s your sons wedding! So I then asked can I go through for tea/coffee now after the church service and she said yes but you won’t be able to have a cup of tea as you would have to take your mask off. So I asked her what I should do if I met with the same 4 people for a craft class, making cards, all sitting round a table. She said to ask if everyone feels well and if they do you could take your mask off, it’s 50/50 with that one. Thanks ,you’ve been a big help. I think now to take as many precautions as possible out and about and gauge other situations individually . Thanks again x

Nocillo profile image
Nocillo in reply toSuzianna10

It’s all good and well for your onc to advise you when to mask or not, but if you get Covid you’ll be the one suffering not her. I’d still mask up if I were you. You have to weigh your comfort level. Good luck!

Suzianna10 profile image
Suzianna10 in reply toNocillo

Thankyou, I’ll mask as much as possible x

Nocillo profile image
Nocillo in reply toBeryl71

I’m glad someone else feels panicky at times. I thought it was just me. Dining out sure isn’t what it used to be is it?

Beryl71 profile image
Beryl71 in reply toNocillo

No, it's not, but lunchtime where there's a quiet corner is fine. We have to choose our moments. X

Beryl71 profile image
Beryl71

On another note I wonder how others find family and friends behave. My friends are very good at keeping away if they've been in risky situations, testing before visiting, but my family less so. If I mention or question it I feel like I'm making a fuss.

8576 profile image
8576

Just to add, I am older so seldom go out and just do the necessary shopping. Every situation is different. So it difficult to advise you one way or the other. IAnd we will get back to normal! (I hope)

Cheers, June S. )

Suzianna10 profile image
Suzianna10 in reply to8576

Thanks for the hope of normality x

Timtam56 profile image
Timtam56

I won’t go out if it’s an indoor setting. I went out for dinner tonight with my unvaccinated daughter and all her friends but I made sure that I booked a beer garden even in Ballarat in winter here in Australia it was freezing but with heaters. I felt so much better about being outside. scary walking in through the pub though even with a mask on.we have to be very careful. Covid has not disappeared.❤️

Suzianna10 profile image
Suzianna10 in reply toTimtam56

Yes, you feel so on edge walking through crowded places, much better outside. Keep looking forward to summer x

Beryl71 profile image
Beryl71 in reply toTimtam56

I've been to Ballarat. Have an Oz friend who lived there. I visited her on one of my trips!

mariootsi profile image
mariootsi

I wouldn't go. I'm still leary of going to a restaurant!

Suzianna10 profile image
Suzianna10 in reply tomariootsi

Ah, it’s difficult isn’t it. The toilets scare me more than walking through the restaurant. I’ll only touch a handle with paper and I must sanitise my hands about ten times x

DDIL1 profile image
DDIL1

Can you go when it’s less busy. We will go places but try to go in an off time. I have 4 vaccines and was a mask almost all the time. If the weather is nice outside is the way to go. We need to enjoy family, friends but with extreme caution. It can be done but just a bit differently. I declined a family party because ppl were sick and they were upfront about it, for my safety. So hopefully your group will look out for you to and be flexible on time and location.

Suzianna10 profile image
Suzianna10 in reply toDDIL1

Thankyou. Yes my friends live in this block of flats, it’s independent living so they will tell me if anyone is ill and most have had Covid! I haven’t because I hibernated in my flat for so long. Having read all these kind replies I think I’ll go and be ultra careful in the restaurant and wear a mask unless I’m eating x

DDIL1 profile image
DDIL1 in reply toSuzianna10

Have fun and enjoy

Totheriver profile image
Totheriver

We have been going out. I take the precautions I can. Have to live life. The locked up thing almost did me in. Have a good time.

Suzianna10 profile image
Suzianna10 in reply toTotheriver

Thankyou, feeling more confident after all these great replies, I’ll go and choose a nice outfit from my wardrobe now x

Totheriver profile image
Totheriver

That is awesome 💕. Have fun.

bracelets1 profile image
bracelets1

Hi there- I think this is all a personal choice for everyone to make. Of course, I wouldn't suggest going out every night of the week, but I think we should enjoy our lives, with caution. And practice all the things we know to do- to keep us safe. Who's to say you couldn't catch something from someone in the waiting room of your doctor's office? If you choose to go I hope you have a great time!

Blessings!

Suzianna10 profile image
Suzianna10 in reply tobracelets1

Thankyou, you are absolutely right. I could hibernate and take all precautions and then get it going to the dentist or somewhere. I will try to practice as safe as I can and avoid crowded areas but then try to live sometimes ! Looking forward to my night out now . Thanks for caring x

Itisfinished profile image
Itisfinished

Go and enjoy yourself! Live your life to the fullest! God knows the number of all our days! So trust Him and dont miss a minute of living this wonderful life my friend! I had covid and I recovered! I give all the Praise to our loving Father! Living in fear will make you sicker and bring added stress which isnt good for us. Be at peace to enjoy your life! 🌻

Suzianna10 profile image
Suzianna10 in reply toItisfinished

Thankyou, just off to church. I needed that reminder that ‘our times are in His hands’ 🙂

Itisfinished profile image
Itisfinished in reply toSuzianna10

Yes, be at peace He has us in His hands! He wants us to live an abundant life! He sent Jesus to give us that life! 🙌

You need to do what makes you comfortable. It’s a shame you can’t ease yourself into some social events before taking such a big plunge.I go out with my close friends for coffee or lunch at times. We all test beforehand and wash our hands very well. I have just been away for a weekend with 2 friends and we had a meal in a pub. The tables were spaced out and I felt fine. It does the soul good to meet up with friends.

I don’t feel so scared of catching Covid now, as I am fully vaccinated and can have anti-virals if needed. I also hope the symptoms would be mild enough to manage the virus.

Good luck with your decision

Clare

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