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Does fatigue get better the longer your on ibrance

marianne88 profile image
13 Replies

Hi. Struggling with ibrance. 3 week of first month. Does the fatigue get better as you go along and what do you do to help with fatigue. Thanks.

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marianne88
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13 Replies
Tap321 profile image
Tap321

We are all different but for me it got much better. I was sick first cycle. Doing great almost two years later. Wishing you the best

BeckyHobson profile image
BeckyHobson

I’ve been on it 17 mos now and I found that YES it does get “better”. I slept a lot the first few months because I was simply exhausted. Then day by day the fatigue only required a nap in the afternoon. Now life is pretty normal.

I find that days 20&21 are tiring and that last week of the month 22-28 I’m a couch potato. Hang in there 👍. It does become very manageable 💕

Jan_Schnabel1 profile image
Jan_Schnabel1

The fatigue only gets bad for me toward the end of each cycle. But the answer for me continues to be fighting through it. I keep working, go for a walk, do Pyo, etc. It's when I lie down that it kills me! Jana.

Mariannem profile image
Mariannem

Fatigue, does get better over time. The best thing to do to help decrease the fatigue is actually exercise. I know it seems difficult to exercise when you are so tired, it does help though. Walking is exercising.

marianne88 profile image
marianne88 in reply toMariannem

It’s just so hard to get the energy up to exercise. What do u do for exercise?

in reply tomarianne88

Even going round the garden clipping, planting the beans, a little light digging or mowing the lawn all helped me - I love my garden. In due course I was able to return to my little daily walk (about 20 minutes) up the road - which is a bit steep hence the short walk! - and I usually try to keep up some stretch and tone exercises in the morning when I get up - just 10-15 minutes or so. As I get up I think Ohohoh what a drag then afterwards I can get going

BeckyHobson profile image
BeckyHobson in reply to

You and I have many things in common. My garden has always been my happy place. When I worked, if it was a rough day I would head outside and pull weeds, plant flowers, prune, mow. Anything in my garden. When I was re-diagnosed May 2016, I quit my career and am blessed to have a hubby that can keep this household running financially. A huge lifestyle change yes, but we firmly believe that stress is a very big part of what feeds cancer.

BeckyHobson profile image
BeckyHobson in reply tomarianne88

You are being too hard on yourself. Try meditation instead. A simple walk to the mailbox or around your yard counts too. Exercise will come back when your body is ready. For now don’t fret the inevitable pounds (remember you have no hormones to help with weight anymore). I am 17 months into this 2nd go around-25 pounds heavier than I’ve ever ever been 😢 BUT am now able to exercise again and can’t wait to get this flab back in shape 😊

Marianne, listen to your body and remember STRESS is not allowed and no body shaming (says the all time worst former self shamer). Draw on those eyebrows-pinch those cheeks and smile 💖

marianne88 profile image
marianne88

Exactly. I am home too. The bills get paid but the savings doesn’t but it’s okay cause I am alive and hopefully getting better soon. The fatigue from ibrance is a killer. Does this ever get better.

Meadesmith profile image
Meadesmith

Take really great care of yourself. Try different supplements to see what works. Keep a regular schedule and plan around the third week. I tried drinking a pot of express when I was working to stay awake. Sometimes it works.

SusieIM profile image
SusieIM

I get tired, I am on my second cycle of Ibrance. It is encouraging to hear that for some, it gets better. I think it is important to work on good self-care. Keep plugged into your support system. Take care, hope it is going well for you.

Hokie profile image
Hokie

Hi everyone, I’m new to this site. I was diagnosed with bilateral bc, with Mets to many bone sites in May 2015. I’ve been on ibrance and letrozole since August 2015. I started on the 125mg, then after 10-12 months dropped down to 100mg for a while and have now been on the 75 mg for almost a year. My tm have stayed down in the 20-30 range during that time. As far as the fatigue goes it is tough in the beginning. I’m still learning my new normal. Something I would highly recommend to all of you out there is if you have a YMCA close by and they have a Livestrong program go for it. It’s a 3 month long introduction to different exercise types which you do at your own speed. Of course you have to have an ok from your oncologist and it’s free. It got me out of a dark place. Meeting with other cancer survivors, hearing their stories and sharing each other’s problems and encouraging each other thru the low points. It gets you up and moving so much that I tried my local Susan G. komen walk this past year ( didn’t quite make it-joint issues) but am planning on trying again this year. So I’m trying to walk as much as I can, more on the good days, less on the 3rd week fatigue days. Just try to keep going. Hang in there, it’s a journey we’re all facing. Have a blessed day🙏

Meadesmith profile image
Meadesmith in reply toHokie

Sounds great! You and I have been on ibrance almost the same length of time. I am currently NED, keeping really healthy, doing all the right stuff. As good as I can feel, I am going for it.

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