7 months and good results! Going strong! - SHARE Metastatic ...

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7 months and good results! Going strong!

21 Replies

7 months on Ibrance/Letrozole because of mets to lymph nodes and lungs. Dose reduced to 100mg after 3 months due to side effects. Scan shows lung nodules miniscule. And onc's manual exam could not find enlarged, hard lymphnodes under arm!🙏🙏🙏🙏

How long have you been taking this combo, with what results?

21 Replies
nstonerocks profile image
nstonerocks

Was on that combo for about 3 years with a little progression in some nodules. So switched in Sept to Faslodex with showed some regression in recent scan.

in reply to nstonerocks

If I understand correctly, the Ibrance works well, but you successfully switched from letrozole to Faslodex and had regression of tumors within 6 months? That's great!!! I pray and hope it'll keep regressing🙏

nstonerocks profile image
nstonerocks in reply to

We are assuming the Ibrance is working. Clearly the faslodex works better for me than the letrozole. I feel

Much better on faslodex. No joint pain!

in reply to nstonerocks

Yes, I believe the letrozole had more severe side effects than the Ibrance.

Yay!!

Boogitymom profile image
Boogitymom

3 years with Ibrance 125 and letrozole, widespread Mets to bone. January scans were all stable and no progression.

LeeannW710 profile image
LeeannW710

Hi. So happy to hear that you and others are doing well on ibrance and letrozole. I recently started this combo and it gives me hope.

God Bless you and may you continue to regress until there is no evidence of disease! Xoxo.

in reply to LeeannW710

Thank you LeeAnn! I wish for great results for you as well🙏❤️

mariootsi profile image
mariootsi

So happy you are getting such good results!

in reply to mariootsi

Thank you!❤️

Mimiholl profile image
Mimiholl

So far so good🙏In May 2 years on letrozole and ibrance 125 , my cancer markers have never been lower, I deal with the side effects, fatigue, hair loss, nausea and bone pain. I'm so thankful to those researchers, Drs and patients who have made these meds possible. I have blood tests every month, scans every 3-4 months and markers every 6 months. Next week Ct scans chest, abdomen and pelvis, and hope for good results.

My family and dear friends carry me through the scary days. I mentioned this before in my last reply, I ABHOR the walgreens commercial, I don't want to be reminded what we go through, it was the worst time, and I don't know anyone dancing around in wigs or smiling when being bound or having head shaved. Disgusting to pretend to care when it's just for profit and to portray mbc patients having a grand old time, and exposing private situations as easy!!! Sorry to rant😕

Mimi

in reply to Mimiholl

Your rant is for all of us!

Hoping and praying for fear results of your scan. Let us know please. It's so important to follow each other in this regiment of meds.🙏❤️

MMMP profile image
MMMP in reply to Mimiholl

The commercial makes me want to puke!!!! I just may have to email Walgreens and tell them it’s so inappropriate for anybody who has been there!!!

Kimr2081 profile image
Kimr2081

Good news!! Hope it continues.

in reply to Kimr2081

Thank you!!

Home18 profile image
Home18

I’ve been on ibrance and letrozole almost 3 years and have had good pet scans ever since, showing all Mets healed. My doctor only had me have one pet scan a year 😃glad you are doing so well!

in reply to Home18

Oh my goodness!! That is so good to hear. Congratulations. That is encouraging and motivating for all of us! ❤️❤️

MMMP profile image
MMMP

Just getting started- this will be my first month-hoping to do as well as you!!!

in reply to MMMP

I hope you'll do well too. The first three months were tough for me and my oncologist lowered the Ibrance to 100mg. That made a big difference for me. Wishing you great results❤️🙏

Maludagui profile image
Maludagui

🙏❤️💃🏽🎀💕🌺😍

Lovemylakie profile image
Lovemylakie

Hi, I have been on Ibrance/Faslodex for almost a year. My cancer metastasized to left lung, 3 tumors, had CT scan last week and my tumors are smaller. Will get PET scan in June for more complete test. I have faith in treatment but know I will always be in treatment. This week marks 4 years since diagnosis. I went 5 years prior undetected.

Best to you

Robin🌷

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