I had oncologist phone call today. He seemed very pleased and confirmed the written info I'd received the other day, that all is stable. I pressed him for three months ibrance so that I can actually make plans. I also move to three monthly zolondronic acid after next week. So if I can have all of that within the same couple of weeks, I can spend more time in Scotland.
However I asked him about this and his response was, 'as long as you come back for your treatment'. When I asked what would happen if I made a more permanent move, he said he wouldn't recommend it. It was important to come back here for my treatment as if things deteriorated I should be here where my treatment takes place.
Have any other UK members had a similar situation? is it so difficult to transfer your treatment to another part of the UK. After all with all the data held electronically, surely it should be quite straightforward! He said, we have your history and the referral process is really difficult. I was surprised and a bit disappointed. But I'm a lateral thinker, so I'll find a way round it. Perhaps I'll just keep a pied a terre here. I'm determined not to get dragged into the mindset of being a patient and my life managed around hospital appointments.